I have a like six bottles in total, 3 microwaveable heating pads, and a rubber water bag, that I fill up/microwave every night or whenever I have a flare and I just place them under my arms, legs, thighs, back, neck etc and just soak up that heat goodness, while looking crazy with all these water bottles, etc oh the things we do, to cope with the pain ? submitted by /u/BulkyCommunity5140 [visit reddit] [comments ..read more

Ever since I was little, I been having intense leg pains. Is a bit hard to describe but it's like a constant dull aching pain. It could happen anywhere on my legs and is normally is reaally painful and only on my legs. When i was in elementary, the doctors chalked it up to growing pains, and in middle school they said it was low calcium. Now in college, the doctor was like "Idk, could be some aspects of fibro". Sitting makes the pain worse and walking or standing for long time causes it. The doctor just gave me a low dose of muscle relaxers as if that's going to help! I normally have to take ..read more

Took antihistamines for a couple of weeks, never usually take them because of side effects, I have fibro, hashimotos, cervical stenosis and raynauds. After taking said antihistamines I now have tinnitus. I believe it is related. Has anyone else have this happen? submitted by /u/glodiegirl [visit reddit] [comments ..read more

I have always joked about how I have No Dopamine Whatsoever, but after reading some comments here about people on dopamine meds, and that my father is being evaluated for Parkinson’s disease, it is making me wonder about possible genetic connections to dopamine problems (and I’m trying not to obsess over it). If you have been treated with dopamine meds or if you know of any medical studies where they are evaluating them for use with fibromyalgia and/or genetic connections between things like fibromyalgia and Parkinsons, can you please post here and let me know? I would love to be part of a me ..read more

Hi friends. Just a wallflower (33f) here who hasn't posted before and is just, really down in the dumps... After several months of dealing with a new type of pain in my chest, on top of everything else, I was diagnosed with Costo today. This is literally like, my 10th freaking diagnoses in the last 2-3 years. All seemed to steam roll after the big Fibro diagnoses. I'm starting to wrap my head around the fact that I'll just be....surviving, in pain for the rest of my life! But I know I'm not alone. I know that I'm just another bird of this feather and we all carry this weight together. (I rhym ..read more

Funny how doctors push and push losing weight and being active as a way to combat our pain. I'm pretty fit, super mobile and flexible. Pretty strong. Lost lots of weight. I don't drink alcohol, I sleep decently when I'm not tossing and turning like a rotisserie chicken. It's just wild. A total lifestyle change over the past few years and what has it done for my pain? Truly not much. Less chance of injury I suppose since I'm more mobile and strong but the pain is so bad it takes my breath away. I do yoga daily, I freaking do wheel pose, candlestick. Yoga hurts, always. Sometimes a good hurt, b ..read more

Due to feeling like crap all of the time, I completely missed that I was having a severe allergic reaction until I looked in the mirror. Tl:Dr I missed the physical discomfort symptoms of a severe allergic reaction until I saw the extensive rash and had to use epipen as directed by nurse. Don't worry, I'm fine. I'm allergic to everything green (grasses out here trying to murder me) so I'm doing immunotherapy shots. The purpose of the shots is to get my immune system to chill the fuck out. On Monday, I did my shot and waited at the allergist for 30min after as usual to see if there's a reactio ..read more

What ACTUALLY helps your fibro? I’ve been on what seems like every medication before anywhere from opioids to antidepressants. MOST have not worked but one of the only ones that has helped is baclofen which is a muscle relaxer. It takes away the sharpness of my pain which is the hardest stuff to deal with, acute shooting pain in my legs (think restless leg syndrome). What helps you guys the most? Opioids were terrible as I got addicted to vicodin and ended up in a detox facility. submitted by /u/Chiller-Than-Most [visit reddit] [comments ..read more

Has anyone tried the Quell Fibromyalgia device? submitted by /u/Radbabe_112 [visit reddit] [comments ..read more

exactly what the title says. i wanna hear some of y’all’s experience with this bc i have some doctor who invalidate my diagnosis because i’m younger submitted by /u/slssasha [visit reddit] [comments ..read more