my room gets really bad because of fibro and depression. i can be really motivated to clean but my body will not let me. seeing my room like this makes my pain so much worse but i can’t clean it because of said pain. it’s a vicious cycle and i really don’t know how to break it. my family can’t help me but i hate living like this. do you guys have any tips? submitted by /u/Evening-Bag4437 [visit reddit] [comments ..read more

They wear me out, but keep me awake. submitted by /u/Accomplished_Ask4941 [visit reddit] [comments ..read more

For those that are able to work, what accommodations do you have, if any? Im a phlebotomist in a blood center. Im on my feet all day except while on break which is one 30min “lunch” and MAYBE 1-2 15-minute breaks. (Sometimes the 15s are literally not possible). At the end of the day, im exhausted. Some days, walking from the car to my house is Herculean feat. I call out a fair amount (i do have intermittent FMLA) and on my days off i just hang out in bed. I dont have enough energy to do anything except work. What accommodations do other people have? Ive asked for anti fatigue mats and been to ..read more

I am SO FRIGGEN tired of this $@@(:&!!!! Disease!!!! Felt so bad yesterday, couldn't sleep last night. Maybedosed off and on for a very few hours. I woke up hurting and feeling Like crap. But I have 2 of my grandchildren this weekend, so I forced myself up, took my meds, drank coffee. Slowly got ready and my hubby, my Service dog & I took the kids (girl 6, boy9) to a nice farm fall festival. Being out in the nice warm & fresh country air did make me over all feel better. The walking (even with my cane) really hurt my hips. back, legs, feet and other owey spots. But I pushed throug ..read more

Extremamente cansada de dizer que estou com dor e/ou cansada e tbm nao aguento mais as pessoas dizendo que eu estou sendo negativa quando eu digo que nao to bem... Tipo? o que é que eu devo fazer? Mentir e fingir que ta tudo bem quando tem dias que nao consigo nem sentar em um lugar porque todo o meu corpo doi? Exausta, estou tentando fazer alguns exercícios ( tipo caminhar ) mas estou me sentindo horrivel e sem forças pra caminhar mas nao quer dizer que eu nao queira.... eu so nao consigo no momento. submitted by /u/sianasu [visit reddit] [comments ..read more

I am 19 now and I’ve never had a job. I can’t stand or sit for too long. Does anybody know any jobs that can be done from home? Something that I can do for a while until I build myself up enough to be able to work IRL. submitted by /u/Various_Chard9001 [visit reddit] [comments ..read more

Wondering if anyone had seen a high positive ANA result in their blood test but all more deeper testing is normal/nothing concerning. Did doctors give you the fibro diagnosis? *if so, please share your ANA titer number and experience submitted by /u/Leadership-Popular [visit reddit] [comments ..read more

reposted as punctuation in title - new to Reddit too! Hello! I'm relatively new to this, finally get to see rheumatology on Halloween and hoping they'll have some sort of diagnosis so I can find more things to help myself (working diagnosis is fibromyalgia plus adha, migraine and hypermobility issues) I've been on mirtazapine but all it did was make me so hungry I felt sick, didn't touch the pain or the sleep etc etc - moving on to duloxetine, taking as instructed but today I woke up happy? Is that normal? e also feels a bit like my insides are shaking. Like feels as though I should have shak ..read more

I get my flu jab every year. (I've had flu, wouldn't wish it on anyone.) I fail to remember how it affects me though and it's steadily getting worse. This year my legs forgot how to walk. submitted by /u/5HAD35OFGR3Y [visit reddit] [comments ..read more

Hi, I tried Wegovy. And why in the beginning I did have a bunch of little side effects as it went on and the dose increased. The side effects got worse and worse. I really didn't want to stop. Because I had lost 10 lb which I find next to impossible to lose anything right now. Who can exercise?!? when you're in so much pain. And unfortunately the medication I'm on is causing weight issue. Has anyone else tried a different gpl1 shot and been able to lose weight. I really want my doctor to try a different brand and maybe I'll be able to take that. Or am I just being uninformed ? submitted by ..read more