There doesn’t seem to be a week that goes by without someone mentioning us or asking about supplements, along with which ones are best for hypermobility and Ehlers-Danlos Syndrome (EDS). As always, supplements should be something to “supplement” an already good diet, something we wrote extensively about in our hypermobility and diet article. However, supplements often come in handy at “The Fibro Guy” as we work in rehab. Many of our clients, towards the end of their programs, once their joints are more stable, find themselves back in the gym (or for the first time) pumping iron. A lot of ..read more

For those with Fibromyalgia, it’s not uncommon to use medications off-label. This essentially means that the medicine is being used in a way that is different from that described in the licence, and one such drug is Naltrexone, or, to be more specific, taking it at a much lower dosage than normal. Finding effective treatment options has always been an issue for those with Fibro, one often filled with trial and error. However, there has been a lot of talk on the block lately about LDN. So, today’s article is all about what it is, what it does, and what the evidence says about it. What is Naltr ..read more

I first wrote this article on Parsonage-Turner syndrome way back in 2017, and in the years since, I have worked with more people with PTS. So, I wanted to revisit this article to add more information for people regarding exercise and rehab for those living with PTS.  What is Parsonage-Turner syndrome? Parsonage-Turner syndrome (PTS), also known as Neuralgic Amyotrophy, is an uncommon neurological disorder characterised by a rapid onset of severe pain in the shoulder and arm. This acute phase may last a few hours to a few weeks and is followed by wasting and weakness of the muscles (amyot ..read more

Please click below if you would prefer to listen to this article on EDS and medical trauma. Living with a lifelong condition like Ehlers-Danlos (EDS) can be a daily challenge for many reasons. Whether chronic pain, intensive or invasive treatments, or anxiety, mark it. However, for many people with EDS, the day-to-day is only the tip of the iceberg. A major and commonly overlooked part of living with EDS is medical trauma, stemming from contact with medical professionals who may not always understand, believe, or even listen. It’s something I sadly see a lot of in sessions and can even become ..read more

Please click below if you would prefer to listen to this article on EDS and hypermobility flare-ups. Many people often say that Hypermobility/ Ehlers-Danlos Syndrome is the gift that keeps giving. Unfortunately, it just so happens that the gifts it gives so readily do so in the form of EDS flare-ups, pain, and multiple systemic issues! While everyone feels differently about which issues feel the worst, most agree that the constant flare-up of symptoms is at least in the top three. So, today, let’s look at flare-ups: what they are, why they happen, and, more importantly, what we can do about th ..read more

Many people often say that Hypermobility/ Ehlers-Danlos Syndrome is the gift that just keeps on giving. Unfortunately, it just so happens that the gifts it gives so readily, do so in the form of EDS flare-ups, pain, and multiple systemic issues! Whilst everyone feels differently as to which issues feel the worst, most do agree that the constant flare-up of symptoms sits at least in the top 3. So, today, let’s look at flare-ups, what they are, why they happen, and more importantly, what we can do about them. What is an EDS flare-up? Flare-ups in EDS are essentially a sudden intensification of ..read more

If you would prefer to listen to this article, please click below. I have talked a lot about the prevalence of Neurodiversity found within the hypermobile population over the last few years. And to be honest, it’s very important to do so!   Most studies find that over 50% of participants with a diagnosis of Autism, attention deficit hyperactivity disorder (ADHD), tic disorders, and Tourette syndrome, are hypermobile, compared with just 20% from the general population. So, guess what today’s article is going to be about? Well, a fantastic new research study that, potential ..read more

If you’re reading this, then chances are you’ve been on quite the journey with your hypermobile body over the last few years. You’ve probably heard it all before, the endless advice about building muscle to stabilise those wobbly joints. However, let’s be real, it’s not always that straightforward, is it?  A lot of the time some of the advice just doesn’t make sense, or you have already tried it and it just didn’t really help. How are you supposed to take the advice of building muscle to support, let’s say, a shoulder joint, when simply holding a cup subluxate/dislocates the joint? Likewi ..read more

Every so often, a topic emerges from the depths of medical research that makes us sit up and take notice. Today, we’re delving into one such intriguing subject: the potential link between hypermobility and autism. Now, before you wonder if this is just another medical rabbit hole, let me assure you, that there’s more to this than meets the eye. In recent years, the whispers within the scientific community have grown louder, suggesting a connection between the elasticity of our joints and the intricacies of the autistic spectrum. It’s a topic that, on the surface, seems as unrelated as chalk an ..read more

In the whirlwind of today’s ever-evolving world, isn’t it often the case that our emotional well-being takes a back seat amidst the relentless hustle? But here’s something to ponder: our emotional health, often overlooked, is actually a cornerstone of our overall well-being, influencing not just our mental state but our physical health as well. Now, have you heard of “alexithymia“? It’s an emotional trait that’s been making waves in recent discussions. At a cursory glance, alexithymia, with its hallmark difficulty in identifying and expressing emotions, might just seem like another tick on the ..read more