The Great Divide: Are ME/CFS and Gulf War Illness Fundamentally Different When it Comes to Exercise?
Health Rising - Finding Answers for Chronic Fatigue Syndrome/ME and Fibromyalgia
by Cort Johnson
2d ago
THE GIST At least eight studies have told us that when people with ME/CFS engage in a 2-day exercise test that their ability to produce energy drops the second day. While this appears to be one of the most anomalous findings in all of medicine all we know is that it applies to people with ME/CFS, in general. A Korean study asked if the same findings apply to people whose ME/CFS was triggered by a toxic exposure; i.e. would exercise one day produce the same drop in energy the next day? The study found that the toxin-injured ME/CFS patients switched from using the highly efficient and cleaner ..read more
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Melody’s ME/CFS, Fibromyalgia and Long COVID Recovering/Recovery Story: How She Got off Oxygen and 13 Meds
Health Rising - Finding Answers for Chronic Fatigue Syndrome/ME and Fibromyalgia
by Cort Johnson
4d ago
Health Rising’s Recovering/Recovery Story Series Continues Geoff’s Narration The GIST https://www.healthrising.org/wp-content/uploads/2024/06/GIST-Melodys-recovery.mp3 The Blog https://www.healthrising.org/wp-content/uploads/2024/06/Melodys-recovery.mp3   Melody had been on oxygen for two and a half years before she found help. Health Rising’s recent Recovery/Recovering Series continues with our first chronic fatigue syndrome/ fibromyalgia plus long-COVID recovering story. Getting sick early in the pandemic, Melody, a physician’s assistant, was hit hard: barely able to breath, she was h ..read more
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Myasthenia Gravis – An ME/CFS / Long COVID Mimic?  
Health Rising - Finding Answers for Chronic Fatigue Syndrome/ME and Fibromyalgia
by Cort Johnson
1w ago
Tracey’s ME/CFS diagnosis seemed right for many years – then more symptoms showed up. The signs that something was going on were there early. As a child, Tracy had low endurance – she’d hit the wall after about 20 minutes of tennis – and was often sick in the mornings. It wasn’t until her mid-30s, following years of persistent widespread pain, the inability to keep up energetically with others her age, and two serious car accidents, though, that she was diagnosed with fibromyalgia.  A few years and a few doctors later she got a chronic fatigue syndrome (ME/CFS) diagnosis by an ME/CFS e ..read more
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“A Failure to Respond”: the ME/CFS Extracellular Vesicle Exercise Study
Health Rising - Finding Answers for Chronic Fatigue Syndrome/ME and Fibromyalgia
by Cort Johnson
1w ago
Check out Geoff’s narrations The GIST https://www.healthrising.org/wp-content/uploads/2024/06/GIST-Failure-to-Respond.mp3 The Blog https://www.healthrising.org/wp-content/uploads/2024/06/HR-Narr-Failure-to-Respond.mp3   (The GIST is about a third way down the page) An extracellular vesicle called an exosome bearing a heat shock protein. (Image by Guillaume-Pelletier, CC – Wikimedia Commons) Extracellular vesicles (EVs) have been a relatively new introduction to the chronic fatigue syndrome (ME/CFS) field. They first popped up in 2018 and since then, at least 8 studies have surveyed the ..read more
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The NIH on the ME/CFS Intramural Study -“Effort Preference”, Exhausted Immune Systems and the Crucial Male/Female Divide
Health Rising - Finding Answers for Chronic Fatigue Syndrome/ME and Fibromyalgia
by Cort Johnson
2w ago
Check out Geoff’s narration The GIST https://www.healthrising.org/wp-content/uploads/2024/06/The-GIST-Effort-Preference.mp3 The Full Blog https://www.healthrising.org/wp-content/uploads/2024/06/HR-Narr-Effort-Preference-med-quality-version-2024-06-02-5.19 PM.mp3   Effort what? Ah, the famous (infamous?) NIH Intramural ME/CFS study. Interrupted by the pandemic and dramatically downsized, the “Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome” study was still one of the most expensive, and certainly the most comprehensive ME/CFS study ever done. THE GI ..read more
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The NIH Wants Your ME/CFS or Fibromyalgia Brain, A New Funding Opportunity and other takes from the NANDSC Roadmap Meeting
Health Rising - Finding Answers for Chronic Fatigue Syndrome/ME and Fibromyalgia
by Cort Johnson
3w ago
Highlights from the ME/CFS Roadmap Presentation at the Spring NANDSC Meeting  VIcky Whittemore, Lucinda Bateman and Maureen Hanson presented recommendations produced by the Roadmap groups to the NINDS . The Roadmap consisted of 8 day long webinars and culminated in a 148-page report that was delivered to the Council. Watch the videocast here – I believe the Roadmap presentation begins about an hour and a half in. The NIH Wants Your Brain The NIH is looking for ME/CFS and fibromyalgia brains to better understand these illnesses The NIH wants your brain – it really does. (Not right now ..read more
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Found – the Master Immune Switch in the Brain: An ME/CFS and Long COVID Perspective
Health Rising - Finding Answers for Chronic Fatigue Syndrome/ME and Fibromyalgia
by Cort Johnson
3w ago
Check out Geoff’s narration The GIST https://www.healthrising.org/wp-content/uploads/2024/05/The-GIST-Found.mp3 The Blog https://www.healthrising.org/wp-content/uploads/2024/05/HR-Narr-Found.mp3   THE GIST Check out Geoff’s narration of the GIST at the top of the blog. Major Takeaway – researchers find a circuit in the brain that turns on and off the inflammatory response that characterizes so many chronic illnesses including ME/CFS and long COVID. It could also explain how stress impacts inflammation.  Twenty years ago, our idea of how the immune system changed radically when Kevi ..read more
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The Edge: Could Monitoring Blood Lactate Help to Manage Post-Exertional Malaise in ME/CFS, Fibromyalgia and Long COVID?
Health Rising - Finding Answers for Chronic Fatigue Syndrome/ME and Fibromyalgia
by Cort Johnson
1M ago
Monitoring blood lactate levels gives athletes “the edge”. Could it help with people with diseases which have high blood lactate levels like ME/CFS, FM and long COVID (The GIST is at the end of the blog) Wearables abound (Fitbit, Oura ring, Apple Watch, STAT earpiece) and who knows what’s lurking on the horizon in the wearable world but a recent paper, suggested something that might be quite attuned to the problems found in chronic fatigue syndrome (ME/CFS), fibromyalgia and long COVID. How about assessing blood lactate levels to get insights into post-exertional malaise? That’s next in Hea ..read more
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The Big Energy Sink? Pt. 2 – ME/CFS and Long COVID Study Suggests Immune Cells Robbing the Body of Energy
Health Rising - Finding Answers for Chronic Fatigue Syndrome/ME and Fibromyalgia
by Cort Johnson
1M ago
Geoff’s Narration The GIST https://www.healthrising.org/wp-content/uploads/2024/05/The-GIST-Big-Energy-Sink-Pt-2.mp3 The Blog https://www.healthrising.org/wp-content/uploads/2024/05/HR-Narration-Big-Energy-Sink-Pt-2-1.mp3   (The GIST is on the bottom right of the blog today) The “Oxidative Stress is a shared characteristic of ME/CFS and Long COVID” preprint is an example of how a small but well-done study can still reach very deeply into the biology of ME/CFS. Health Rising covered Mark Davis’s presentation on the effort in the Dec 2023 NIH ME/CFS Conference, but the preprint that was jus ..read more
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The Big Energy Sink? Pt: 2 – ME/CFS and Long COVID Study Suggests Immune Cells Robbing the Body Of Energy
Health Rising - Finding Answers for Chronic Fatigue Syndrome/ME and Fibromyalgia
by Cort Johnson
1M ago
Vishnu Shankar, an enterprising graduate student, turned a struggling NIH grant on T-cells into a win. (The GIST is on the bottom right) The “Oxidative Stress is a shared characteristic of ME/CFS and Long COVID” preprint example of how a small but well-done study can still reach very deeply into the biology of ME/CFS. Health Rising covered Mark Davis’s presentation on the effort in the Dec 2023 NIH ME/CFS Conference but preprint that was just published includes long COVID and includes new findings. Some people may remember that Health Rising reported that becoming obsessed with the energy p ..read more
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