Together for Short Lives News
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Together for Short Lives is the UK charity for children and young people who are expected to have short lives. Our blog features comment and analysis around the work of Together for Short Lives and the children’s palliative care sector generally.
Together for Short Lives News
6d ago
Meet Adrian. 35 years old and hailing from Bedfordshire, Adrian is about to take on a new challenge for a very special reason. We caught up with him to find out more about what he’s doing, what drives him, and how he’s prepared himself to go the distance.
The post Running for Emmanuel: Adrian’s story appeared first on Together for Short Lives ..read more
Together for Short Lives News
6d ago
In what would have been his son’s sixth birthday month, Andy, from The Wirral, will be a few thousand metres above us in an epic fundraising challenge in memory of his little boy Charlie.
The post The Amazing Alpine Andy: dad takes on five-mountain-challenge in memory of his son appeared first on Together for Short Lives ..read more
Together for Short Lives News
3w ago
We are sad to announce that our Chief Executive, Andy Fletcher, will be leaving Together for Short Lives. Andy joined the charity in 2018. During his time he led significant growth in the charity’s impact and income, extending support for families and professionals, supporting quality improvement in palliative care and successfully advocating for better funding. […]
The post Chief Executive Andy Fletcher announces his departure from Together for Short Lives appeared first on Together for Short Lives ..read more
Together for Short Lives
1M ago
The level of violence and racism that has been witnessed taking place across the UK stands in direct opposition to our shared values of diversity, inclusion and compassion. We remain deeply concerned for the safety of our communities, and in particular, the families of seriously ill children. As the lead charity for children’s palliative care, […]
The post A statement from Together for Short Lives appeared first on Together for Short Lives ..read more
Together for Short Lives
1M ago
In July, alongside Bliss, we launched a new booklet designed for families whose baby’s future is uncertain. We hope that it will help parents and carers through this time and help them to think about the best care for their baby and the support they need as a family. This information for parents is complemented […]
The post Families need to be supported and enabled to have choices appeared first on Together for Short Lives ..read more
Together for Short Lives
1M ago
Together for Short Lives has welcomed the new government’s mission-led focus on service as set out in the King’s Speech. But the charity warns that time is short if minsters are to deliver real change that transforms the lives of seriously ill children and their families across the UK. While the speech contained no mention […]
The post Serving seriously ill children must be part of this government’s mission appeared first on Together for Short Lives ..read more
Together for Short Lives
1M ago
Alongside the charity Bliss, we are launching new information developed for families whose baby’s future is uncertain The information, which can be found here, guides families through the different aspects of perinatal palliative, ongoing, end of life and bereavement care. This is specifically designed for families who have either received an antenatal diagnosis of a […]
The post Together for Short Lives and Bliss launch new information for families whose baby’s future is uncertain appeared first on Together for Short Lives ..read more
Together for Short Lives
1M ago
Ben is a Family Service Coordinator working for Together for Short Lives as part of the Kentown Children’s Palliative Care Programme. A transformative project between Together for Short Lives, The Kentown Wizard Foundation and Rainbow Trust Children’s Charity. Created to help families of seriously ill children access the help and support they need in their […]
The post Reaching out appeared first on Together for Short Lives ..read more
Together for Short Lives
2M ago
Back in 2022, Francesca Lennon took on the major challenge of cycling to all 54 children’s hospices across the UK. Inspired by her work as a children’s nurse and her own experience of personal loss, Francesca is back to take on another epic cycle by pedalling 54 miles every day to represent the 54 children’s […]
The post Miles that matter appeared first on Together for Short Lives ..read more
Together for Short Lives
2M ago
With less than one week to until polling day, prospective parliamentary candidates (PPCs) from all the parties contesting the general election are making their final pitches to voters across the UK. If a candidate knocks on your door, you have a vital opportunity to ask them what they would do to make sure seriously ill […]
The post Make sure your next MP delivers for children who need palliative care appeared first on Together for Short Lives ..read more