Denmark
Endometriosis.org
by Lone Hummelshoj
7M ago
Denmark has led the way in terms of implementation of (state-funded) centres of expertise for the care of those with endometriosis since 2001. Now its national support organisation is on the state budget. Endometriose Fælleskabet (the Danish national support organisation) together with national clinicians, researchers, scientists, and advocates in endometriosis succeeded in securing an open hearing on endometriosis with the parliamentary select committee for health on 15 November 2023. The powerful hearing can viewed here (by those who understand Danish).  Less than two weeks after the hear ..read more
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Australia
Endometriosis.org
by Lone Hummelshoj
7M ago
Australia was the first country to develop a roadmap and blueprint to tackle endometriosis in a nationwide, coordinated manner. This blueprint is outlined in the National Action Plan for Endometriosis (NAPE), created from a partnership between government, endometriosis experts and advocacy groups. Serious investment has been committed by the Australian government to move the field of endometriosis forward – a significant milestone, which is now being replicated by other countries. Details of investment in endometriosis in Australia, the allocation of funds for which initiatives – and progress ..read more
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France
Endometriosis.org
by Lone Hummelshoj
7M ago
The launch of a French national strategy for endometriosis is the second such national initiative, following Australia’s development of a National Action Plan, and it is an important milestone for the cause of endometriosis. The French President, Emmanuel Macron, made the announcement of the national strategy in January 2022 – a rare declaration from a government leader.  He tweeted: It [endometriosis] is not a women’s problem, it is society’s problem. The national strategy we’re launching brings hope for a better quality of life for millions of women and girls.  What is the French nat ..read more
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Survey of unanswered research questions in endometriosis
Endometriosis.org
by Lone Hummelshoj
3y ago
HOME | JLA PSP FOR ENDOMETRIOSIS | JLA PSP STEERING GROUP The James Lind Alliance Priority Setting Partnership for Endometriosis set out to identify and prioritise uncertainties, or ‘unanswered research questions’, about endometriosis. Its mission was to ensure that those who fund health research are aware of what really matters to both women with endometriosis and health care providers. The JLA PSP for Endometriosis conducted two surveys. The first between 7 March and 31 May 2016, and a second (follow up) survey between 20 February and 20 March 2017. These surveys were use ..read more
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Endometriosis: the experts’ guide to treat, manage and live well with your symptoms
Endometriosis.org
by Lone Hummelshoj
3y ago
Andrew Horne (PhD FRCOG) and Carol Pearson Endometriosis: the experts’ guide to treat, manage, and live well with your symptoms is an easy to read book, which covers most aspects of what endometriosis is, how it is diagnosed and treated – and how to manage persistent symptoms. Co-authors, professor Andrew Horne and Carol Pearson, have written a well-structured book presenting the latest knowledge we have about endometriosis, along with advice on how to manage symptoms and take control of your body and health. The book also includes first-hand experiences of women, who have overcome the pain, f ..read more
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Endometriosis: a concise practical guide to current diagnosis and treatment
Endometriosis.org
by Lone Hummelshoj
3y ago
In Endometriosis: a concise practical guide to current diagnosis and treatment the editors, who are well-known champions of women with endometriosis, have invited colleagues from around the world to submit their opinions about endometriosis and to justify the reasons for their proposed treatment strategies. Editors, Liselotte Mettler, Ibrahim Alkatout, Jörg Keckstein, and Ivo Meinhold-Heerlein, have brought together their colleagues’ deliberations allowing women with endometriosis — and those who treat them! — to read, digest, evaluate, and decide what may be potential solutions for ..read more
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Endometriosis: the inside story
Endometriosis.org
by Lone Hummelshoj
3y ago
Two women, one a nurse in Australia, the other a film maker in the US in Texas, had identical experiences with endometriosis: mis-diagnosis, unbelievable pain dismissed as hypochondria, imagination, or “This is normal – put up with it”. They each determined to share their experiences with other endometriosis sufferers. They met in an internet chat room. They planned, they raised money and from their own experiences with the disease and with the help of some caring doctors and women’s support groups they made a documentary film that shows women what they can expect when they get endometrio ..read more
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Facts about endometriosis
Endometriosis.org
by Lone Hummelshoj
3y ago
These FACTS are produced by the World Endometriosis Society and the World Endometriosis Research Foundation and have been re-produced with permission. These facts are current as of the date at the bottom of this page. This section is particularly aimed at journalists, medical writers, bloggers, etc, who wish to make sure their facts about endometriosis are correct before they publish information about the condition*. Endometriosis lesions* Endometriosisis a condition in which tissue similar to the lining inside the uterus (called “the endometrium”), is found outside the u ..read more
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Laparoscopic appearance of endometriosis
Endometriosis.org
by Lone Hummelshoj
3y ago
The famous “Colour Atlas” of the laparoscopic appearance of endometriosis has been re-issued and is now available for free download from the Internet The Colour Atlas, authored by doctors Dan Martin, David Redwine, Harry Reich, and Arnold Kresch, was first published in 1990. It was revised for the web in September 2007 and again in January 2017. Recognition of endometriosis is necessary for diagnosis and treatment, and as this volume demonstrates the diagnosis of endometriosis and differentiation from other diseases of similar appearances can be difficult. This volume provides, in addition to ..read more
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Myths and misconceptions in endometriosis
Endometriosis.org
by Lone Hummelshoj
3y ago
by Ros Wood, Heather Guidone, and Lone HUmmelshoj Gender issues and the complex nature of endometriosis have led to the unfortunate creation of too many myths and misconceptions about a disease which affects an estimated 176 million women (and their families) worldwide. Here are the facts about endometriosis – and let’s dispel some myths as well! Endometriosis is difficult to understand From a woman’s perspective, endometriosis is a disease surrounded by taboos, myths, delayed diagnosis, hit-and-miss treatments, and a lack of awareness, overlaid on a wide variety of symptoms that embody a stub ..read more
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