We’re changing our name!
Recurrent Meningitis Association
by Administrator
4y ago
We’re changing our name! We’re becoming the Recurrent Meningitis Association! Over the next couple of months you will notice changes as we migrate from the Mollaret’s Meningitis Association to the Recurrent Meningitis Association. Learn More Video Why are we changing? Listen to our founder, Michael Hrehor, and Executive Director, Gabrielle Costello, talk about the change. FAQ Frequently Asked Questions Will you still be focusing on Mollaret's meningitis? Yes.  Our primary focus will still be on recurrent viral meningitis, also known as Mollaret’s meningitis.  We will be ..read more
Visit website
Brianna’s Story
Recurrent Meningitis Association
by Administrator
4y ago
By Janelle F. Pensacola, FL Brianna, my daughter, was born as a micropremie at 25 weeks gestation. Brianna’s stay in the Neonatal Intensive Care Unit (NICU) was uncomplicated. When Brianna was 2 years old, on Nov 30, 2016, she was hospitalized with bacterial meningitis which was complicated with mastoiditis in osteomyelitis of the cervical spine. It was also complicated by pneumonia in sepsis. She survived this and went to rehabilitation at Children’s Healthcare of Atlanta (CHOA). It took about 6 months for her to completely recover… learning how to walk, speak and feed herself. One sur ..read more
Visit website
2018 Q2 Research Update
Recurrent Meningitis Association
by Administrator
4y ago
Identification of novel innate immunodeficiencies in patients with HSV-2 Mollaret’s meningitis Dr. Alon Schneider Hait, M.D, Ph.D fellow Supervision: Prof. Trine H. Mogensen Department of Infectious diseases, AUH Department of Biomedicine, Faculty of Health Aarhus, Denmark Recurrent benign lymphocytic meningitis (RBLM) is a viral infectious disease of the brain and its covering membranes, caused by herpes simplex virus type 2 (HSV-2) in the majority of reported cases. The disease is characterized by recurrent episodes of headache, photophobia, fever and stiffness of the neck alongside focal an ..read more
Visit website
My Fight for a Better Life!
Recurrent Meningitis Association
by Administrator
4y ago
My Fight for a Better Life! By Rosely Hodson Australia, NSW state I’m 57 years old. I’m Brazilian with 3 children and 4 grandchildren ( they live in Brazil). I found the love of my life and decided to move to Australia in 2011 to marry him. My first episode was at the end of 2012. I spent the new year in the hospital and it was very difficult to be very far away from my family and I had many problems with the hospital. In LP there wasn’t enough liquid to prove whether it was viral or bacterial, so I was treated as a bacterial infection. It took me 6 months to recover. In 2016 I had the secon ..read more
Visit website
Ask the Expert: Episode 1
Recurrent Meningitis Association
by Administrator
4y ago
Ask the Expert:  Episode 1 In this first episode of ask the expert, Dr. Benjamin Galen provides information on lumbar punctures including how it relates to those with Mollaret’s meningitis.  It provides answers to the most commonly asked questions about lumbar punctures we have received. For more information from the experts visit our Ask the Experts page. The post Ask the Expert: Episode 1 appeared first on Recurrent Meningitis Association ..read more
Visit website
My Plea
Recurrent Meningitis Association
by Administrator
4y ago
My Plea By Christine H. The purpose is to serve as a plea. This is a plea for someone out there to HEAR, LISTEN, and use this information to ACT. This is the voice of one, the voice for many, the voice of all who are suffering from Mollaret’s Meningitis. My name is Christine H. I am a 33 year old female with three young children. I am a registered nurse currently working in intensive care. My life was normal and happy. Historically, I was relatively healthy and free from any acute or chronic health care issues. Ironically, I was healthier than I had ever been in my life. I was working out 3 ..read more
Visit website
Chive Charities
Recurrent Meningitis Association
by Administrator
4y ago
Chive Charities has changed the giving paradigm. As opposed to using the cause to raise awareness on behalf of the recipient, we encourage the recipient to let their story raise awareness for their cause. Donors are connected to the entire story from beginning to end – we watch our recipients go out into the world to do incredible things, and we are right beside them. For us, it’s not just about giving. It’s about connecting. Each month we find unique causes to support: people in need of financial assistance; veterans in need of support. Then, we research how we can best fit their needs – no ..read more
Visit website
Amanda Buckland Thanks Her Lifesavers
Recurrent Meningitis Association
by Administrator
4y ago
Meningitis Now Article Amanda Buckland cannot remember anything from Boxing Day night when she became feverish, started vomiting, and was experiencing severe muscle pain and confusion. The 35-year-old praised Simon Read and Matthew Laws from the East of England Ambulance Service NHS Trust (EEAST) for their care after her condition rapidly deteriorated. Amanda has been living with Mollaret’s meningitis – a rare recurring viral form of the disease – for more than six years. She was reunited with Simon and Matthew on 20 February in Norwich to thank them personally after the ..read more
Visit website
Our Founder on KHQ Spokane
Recurrent Meningitis Association
by Administrator
4y ago
Our founder, Michael Hrehor, was featured on KHQ local news (Spokane, WA) to talk about an amazing donation he received from Chive Charities.  The chairity is donating an Action Trackchair ST so Michael will be able to function outside of his house and participate in activities with his family.  Chive Charities supports those with rare medical conditions, veterans, first responders, and special eduction.  We are appriciative of KHQ news for helping us feature those living with Mollaret’s meningitis (aka recurrent aseptic meningitis). Below is the follow up piece once Michael r ..read more
Visit website
UofM Brain Endowment Bank
Recurrent Meningitis Association
by Administrator
4y ago
The University of Miami’s Brain Endowment Bank™ is a National Institutes of Health (NIH) NeuroBioBank, one of six designated brain and tissue biorepositories in the nation. The Brain Endowment Bank encourages brain donation to support medical and scientific researchers, who study the human brain in search of better medications and treatments, and ultimately, a cure for brain diseases and disorders. University of Miami Brain Endowment Bank The post UofM Brain Endowment Bank appeared first on Recurrent Meningitis Association ..read more
Visit website

Follow Recurrent Meningitis Association on FeedSpot

Continue with Google
Continue with Apple
OR