Growth Plateaus
Love and a Leap of Faith - An extraordinary girl living with Trisomy 18 (Edwards Syndrome)
by
6M ago
Miss Vera, who has been growing steadily over the years, surprised us in June this year with a slight drop in her weight. So it's a sign that we're not feeding enough as she's 15 now and nutritional needs have increased. We've gained back the weight loss to neutral and hope to continue giving her a boost. Check in again at her 16th birthday for any growth progress :)  ..read more
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When Do I Let Go - New Song Out Now
Love and a Leap of Faith - An extraordinary girl living with Trisomy 18 (Edwards Syndrome)
by
4y ago
After the launch of Love Is Not Rare in 2018, I wanted to carry on sharing the many songs Vera has inspired. 'When Do I Let Go' is a song I wrote after our difficult episode with Vera in 2016. We stayed at the Ronald McDonald House then. At the time, it was a dilemma deciding what we should do as parents. Do we hang on? Do we let go? Do we pray or say goodbye?  A blessed opportunity emerged earlier this year to collaborate with Ronald McDonald House Charities Singapore who is celebrating their 30th year. They heard the song and were keen on a music video about parents' experience with th ..read more
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Double Whammy
Love and a Leap of Faith - An extraordinary girl living with Trisomy 18 (Edwards Syndrome)
by
7y ago
June was supposed to be the school holidays. It was no holiday for us. We spent the last 2 weeks of June with Vera in hospital. She has a viral infection - RSV. Thankfully, it turned out to be not as serious as the one last year.  Then, before she could be discharged, D got sick. After 7 straight days of fever, we brought him to the hospital. It turned out to be Pneumonia.  From doing our 'hospital rounds' at one hospital, to 'hospital rounds' at another. In total, Vera was sick for 2 weeks and Daen for 2 weeks.  The after math: Ian and I are burned out. (Both of us once drove away from our i ..read more
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