Crnic Institute Studies Helping Patients with Down Syndrome Regression Disorder “Wake up”
Global Down Syndrome Foundation | Research, Care, Education, Advocacy
by Cole Wilkes
1w ago
For many families, the threat of Down Syndrome Regression Disorder (DSRD) feels harrowing and constant. Gratefully, two scientists are leading the charge to understand and treat this heartbreaking condition, and thanks to one relentless mom/advocate, they’re working together. Crnic Institute Executive Director Dr. Joaquin Espinosa and Children’s Hospital Los Angeles Director of Neuroimmunology had no idea they had been developing complementary research on DSRD until mom Linda Roan of Boulder, CO connected the dots for them. The two scientists joined forces to create the first-ever randomized c ..read more
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Exclusive Interview with the DSA of Southern New Jersey’s Co-Executive Directors
Global Down Syndrome Foundation | Research, Care, Education, Advocacy
by Cole Wilkes
3w ago
   When the Down Syndrome Association of Southern New Jersey (DSASNJ) was formed in 2003, the small group of founding parents were focused on supporting their young children with Down syndrome. As those children have grown and blossomed over 20 years, DSASNJ has grown to service individuals and families from the prenatal stage to adulthood. The organization proudly serves over 120 families across the Southern New Jersey region. Earlier this month, GLOBAL Vice President – Strategic Alliances, David Tolleson, met with Terri Bank and Dria Law, Co-Executive Directors of the DSASNJ, to di ..read more
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GLOBAL Webinars en Español Abril 2024
Global Down Syndrome Foundation | Research, Care, Education, Advocacy
by Cole Wilkes
3w ago
Actualizaciones importantes de las pautas de atención médica para niños con síndrome de Down Resumen En este importante webinar, la Dra. Karla Adney Flores habló sobre: ¿Qué recomendaciones de la guía de 2022 son diferentes a las anteriores? ¿Qué es lo último en atención pediátrica para el síndrome de Down? ¿En dónde pueden acceder a la guía en español las familias y los médicos? Presentación de Diapositivas: Haga click aquí  Dra. Karla Adney Flores es Pediatra del Instituto Nacional de Pediatría. Realizó su posgrado en Atención Integral al Paciente Pediátrico con Síndrome d ..read more
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GLOBAL LEADERS – An Exclusive Interview with Erin Suelmann, Executive Director of the Down Syndrome Association of Greater St. Louis
Global Down Syndrome Foundation | Research, Care, Education, Advocacy
by Cole Wilkes
3M ago
Under Erin Suelmann’s leadership, the Down Syndrome Association of Greater St. Louis (DSAGSL) has become one of the largest local Down syndrome organizations in the United States. In 2023 the organization raised over $1 million in support of over 2,000 families and expanded their impactful programs and services. Erin and her team have maintained an A+ rating from the Better Business Bureau and met all 20 BBB Charity Accountability Standards. A strong believer in financial transparency, DSAGSL invites you to view their latest Annual Report and see exactly how their sponsorship of the GLOBAL Med ..read more
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Sleep Apnea Across the Lifespan in People with Down Syndrome
Global Down Syndrome Foundation | Research, Care, Education, Advocacy
by admin
5M ago
Takeaways from a GLOBAL Webinar Article from the award-winning ​Down Syndrome World magazine​. Learn more about our magazine, webinars​ and GLOBAL Membership benefits Sleep Apnea Experts Earlier this year, GLOBAL organized a webinar on sleep apnea that attracted 420 registrants from 43 states and 13 countries. The webinar covered the latest understanding of the importance of sleep screening across the age spectrum in people with Down syndrome, consequences of untreated sleep apnea, medical treatment options, and surgical treatment options including hypoglossal nerve stimulation. Dr. Ignaci ..read more
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Government Profiles: Robert Aderholt (R-AL) & Tammy Baldwin (D-WI)
Global Down Syndrome Foundation | Research, Care, Education, Advocacy
by admin
6M ago
  The post Government Profiles: Robert Aderholt (R-AL) & Tammy Baldwin (D-WI) appeared first on Global Down Syndrome Foundation ..read more
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Connor Long & Josh Peck: A GLOBAL Bromance
Global Down Syndrome Foundation | Research, Care, Education, Advocacy
by admin
7M ago
The two wildly accomplished young men bond over a shared motto: “I don’t do nervous. I do excited and I do prepared.” From Down Syndrome World Issue 3, 2023 Last year’s Be Beautiful Be Yourself Fashion Show brought together two celebrities— alum Connor Long and newcomer Josh Peck. Paired for a red-carpet photo shoot, the two bonded instantly and the chemistry was off the charts— the photos speak for themselves! Almost a year later, Josh and Connor remember their time together as unusually organic and an absolute blast. “I think we could have stood there for another hour,” Josh recalls wi ..read more
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GLOBAL Launches Pilot Fitness Program using Mann Method PT
Global Down Syndrome Foundation | Research, Care, Education, Advocacy
by Shaqaula Habinsky
10M ago
Mann Method PT is a 1-hour biweekly fitness program that focuses on increasing strength, balance, and cardiovascular health in participants using a variety of evidence-based exercises. The program follows the Mann Method PT and is taught by individuals trained by Sarah Mann PT, DPT, MBA, NSCA-CPT. Participants complete an intake assessment when beginning the program and are re-evaluated after 8 weeks to measure their overall progress. Participants also have the option to join in a weekly social dinner outing each Friday, and discuss healthy, post-workout food choices. Participation is free. Th ..read more
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Rosa DeLauro and Tom Cole GLOBAL Advancement Awards Given to Two Inspiring Individuals with Down Syndrome at GLOBAL’s AcceptAbility Gala
Global Down Syndrome Foundation | Research, Care, Education, Advocacy
by Colleen Rankin
10M ago
In a heartwarming celebration of talent, perseverance, and advocacy, the Global Down Syndrome Foundation (GLOBAL) recognized the remarkable accomplishments of two extraordinary individuals with Down syndrome at the 2023 AcceptAbility Gala in Washington, DC. Eric Latcheran and Melissa Silverman were honored with the inaugural Rosa DeLauro and Tom Cole GLOBAL Advancement Awards to support their continuing education. At the AcceptAbility Gala, GLOBAL recognized the transformative leadership of Representatives Rosa DeLauro and Tom Cole by unveiling post-secondary awards in their names. This gestur ..read more
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Scientists Discover Mechanism Affecting Heart Development in Down Syndrome
Global Down Syndrome Foundation | Research, Care, Education, Advocacy
by Colleen Rankin
11M ago
Research at the University of Colorado Anschutz Medical Campus discovers a molecular mechanism contributing to the development of heart malformations in infants with Down syndrome. From Down Syndrome World Issue 2, 2023 Newborns with Down syndrome, a genetic condition resulting from an additional copy of chromosome 21 (trisomy 21), face a significantly increased likelihood of being born with congenital heart defects. Roughly half of all babies with Down syndrome are estimated to have some form of heart malformation, making Down syndrome the leading cause of congenital heart abnormalities ..read more
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