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Global Down Syndrome Foundation Blog
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Dedicated to significantly improving the lives of people with Down Syndrome through research, medical care, education and advocacy.
Global Down Syndrome Foundation Blog
1M ago
A message from GLOBAL’s President & CEO, Michelle Sie Whitten Cable Baby & Role Model Growing up in the cable TV industry in Colorado (as I remember it) there were several friendly “camps” – the Bob Magness/John Malone camp, the Bill Daniels camp, the Glenn Jones camp, and the Gene Schneider camp to name a […]
The post A Loving Tribute to Carla Gene Shankle appeared first on Global Down Syndrome Foundation ..read more
Global Down Syndrome Foundation | Research, Care, Education, Advocacy
1M ago
GLOBAL is thrilled to partner with Jack’s Basket to gift FREE one-year GLOBAL memberships to new parents who recently received a prenatal or postnatal Down syndrome diagnosis. Thanks to Jack’s Basket’s extensive distribution network, thousands of parents will enjoy newfound access to research and medical care GLOBAL Webinars and the award-winning Down Syndrome World magazine. […]
The post GLOBAL & JACK’S BASKET JOIN FORCES TO OFFER FREE GLOBAL MEMBERSHIPS FOR NEW PARENTS appeared first on Global Down Syndrome Foundation ..read more
Global Down Syndrome Foundation | Research, Care, Education, Advocacy
1M ago
Actualizaciones importantes de las pautas de atención médica para niños con síndrome de Down Resumen En este importante webinar, la Dra. Karla Adney Flores habló sobre: ¿Qué recomendaciones de la guía de 2022 son diferentes a las anteriores? ¿Qué es lo último en atención pediátrica para el síndrome de Down? ¿En dónde pueden acceder a la […]
The post GLOBAL Webinars en Español Abril 2024 appeared first on Global Down Syndrome Foundation ..read more
Global Down Syndrome Foundation | Research, Care, Education, Advocacy
2M ago
We are honored to share that GLOBAL was selected as the top winner at the CEO Success Community Playing for Charity Corporate Night during the WBENC National Tradeshow in Denver in March 2024. This is the largest conference for women-owned businesses, connecting them with Fortune 500 companies through seminars and special events. “We selected GLOBAL […]
The post GLOBAL Chosen as Top Charity at Largest Conference for Women-Owned Businesses appeared first on Global Down Syndrome Foundation ..read more
Global Down Syndrome Foundation | Research, Care, Education, Advocacy
2M ago
For many families, the threat of Down Syndrome Regression Disorder (DSRD) feels harrowing and constant. Gratefully, two scientists are leading the charge to understand and treat this heartbreaking condition, and thanks to one relentless mom/advocate, they’re working together.
Crnic Institute Executive Director Dr. Joaquin Espinosa and Children’s Hospital Los Angeles Director of Neuroimmunology had no idea they had been developing complementary research on DSRD until mom Linda Roan of Boulder, CO connected the dots for them. The two scientists joined forces to create the first-ever randomized c ..read more
Global Down Syndrome Foundation | Research, Care, Education, Advocacy
3M ago
When the Down Syndrome Association of Southern New Jersey (DSASNJ) was formed in 2003, the small group of founding parents were focused on supporting their young children with Down syndrome. As those children have grown and blossomed over 20 years, DSASNJ has grown to service individuals and families from the prenatal stage to adulthood. The organization proudly serves over 120 families across the Southern New Jersey region.
Earlier this month, GLOBAL Vice President – Strategic Alliances, David Tolleson, met with Terri Bank and Dria Law, Co-Executive Directors of the DSASNJ, to di ..read more
Global Down Syndrome Foundation | Research, Care, Education, Advocacy
3M ago
Actualizaciones importantes de las pautas de atención médica para niños con síndrome de Down
Resumen
En este importante webinar, la Dra. Karla Adney Flores habló sobre: ¿Qué recomendaciones de la guía de 2022 son diferentes a las anteriores? ¿Qué es lo último en atención pediátrica para el síndrome de Down? ¿En dónde pueden acceder a la guía en español las familias y los médicos?
Presentación de Diapositivas: Haga click aquí
Dra. Karla Adney Flores es Pediatra del Instituto Nacional de Pediatría. Realizó su posgrado en Atención Integral al Paciente Pediátrico con Síndrome d ..read more
Global Down Syndrome Foundation | Research, Care, Education, Advocacy
5M ago
Under Erin Suelmann’s leadership, the Down Syndrome Association of Greater St. Louis (DSAGSL) has become one of the largest local Down syndrome organizations in the United States. In 2023 the organization raised over $1 million in support of over 2,000 families and expanded their impactful programs and services. Erin and her team have maintained an A+ rating from the Better Business Bureau and met all 20 BBB Charity Accountability Standards. A strong believer in financial transparency, DSAGSL invites you to view their latest Annual Report and see exactly how their sponsorship of the GLOBAL Med ..read more
Global Down Syndrome Foundation | Research, Care, Education, Advocacy
7M ago
Takeaways from a GLOBAL Webinar
Article from the award-winning Down Syndrome World magazine.
Learn more about our magazine, webinars and GLOBAL Membership benefits
Sleep Apnea Experts
Earlier this year, GLOBAL organized a webinar on sleep apnea that attracted 420 registrants from 43 states and 13 countries. The webinar covered the latest understanding of the importance of sleep screening across the age spectrum in people with Down syndrome, consequences of untreated sleep apnea, medical treatment options, and surgical treatment options including hypoglossal nerve stimulation.
Dr. Ignaci ..read more
Global Down Syndrome Foundation | Research, Care, Education, Advocacy
8M ago
The post Government Profiles: Robert Aderholt (R-AL) & Tammy Baldwin (D-WI) appeared first on Global Down Syndrome Foundation ..read more