Down Syndrome Prenatal Testing
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Down syndrome prenatal testing and discussion by bioethicist Mark Leach. Blog discusses NIPT, prenatal testing and its ethics, living with Down syndrome, and bioethics.
Down Syndrome Prenatal Testing
1y ago
Dr. Skotko and his team of researchers are out with updated estimates of the impact of prenatal testing and selective termination on births of babies with Down syndrome, this time for Australia and New Zealand. Updated estimates As covered in previous posts, Dr. Brian Skotko, Frank Buckley, and Gert de Graaf, along with additional researchers ..read more
Down Syndrome Prenatal Testing
1y ago
A recent publication by my colleagues and me address the various implications of Roe v. Wade being overturned for the administration of prenatal genetic testing. In the December 2022 edition of The Helen Journal, Stephanie Meredith, Kara Ayers, Marsha Michie, Robert Dinerstein, and myself provide quick takes on how the overturning of Roe v. Wade ..read more
Down Syndrome Prenatal Testing
1y ago
From a historic summit of stakeholders come 20 recommendations for improving prenatal genetic testing to avoid bias against those with disabilities. In the Spring of 2022, the most diverse group of stakeholders convened near Johns Hopkins University to address how prenatal genetic testing’s administration could be improved. Representatives from OB/Gyns, medical geneticists, bioethicists, and a ..read more
Down Syndrome Prenatal Testing
1y ago
A webinar is now available online that covers the history of eugenics, it’s present application, and what the future holds. The Foundation Against Intolerance & Racism (FAIR), through its focus group of FAIR in Medicine, hosted a webinar on eugenics. Mark Buchanan, MD, moderated the following panel and the topics they presented on: Robert Graboyes ..read more
Down Syndrome Prenatal Testing
1y ago
ANNOUNCEMENT: WHAT: Eugenics: The Curse that Keeps on Cursing, a Webinar WHEN: Thursday, October 27, 2022, 7 – 8:30 pm, EDT WHO: Sponsored by the FAIR in Medicine (more below), join Moderator, Mark Buchanan, MD and panelists, William B. Hurlburt, MD, Robert Graboyes, PhD, and Mark Leach (yours truly), JD, MA (Bioethics) MORE: The Foundation ..read more
Down Syndrome Prenatal Testing
1y ago
Researchers Dr. Brian Skotko, Frank Buckley, and Gert de Graaf, have updated their population estimates for lives with Down syndrome in Europe. They show that Europe is putting the “eu” into eugenics. I’ve written previously about the excellent work Dr. Brian Skotko, Frank Buckley, and Gert de Graaf are performing in tracking population estimates for ..read more
Down Syndrome Prenatal Testing
1y ago
To our readers who are parents, what are the most important lessons you learned between your first child being born and his or her first birthday? The question above was the Question of The Day (QOTD) on a newsletter I subscribe to. Below is my response, which I thought worth sharing here, given the nature ..read more
Down Syndrome Prenatal Testing
1y ago
Since the Supreme Court overturned Roe v. Wade in the Dobbs decision, twenty states have enacted or implemented bans on abortion. To be consistent with their policy making, almost half of them now need to ban wrongful birth lawsuits. The image above is from the New York Times, which is tracking state abortion laws. Currently ..read more
Down Syndrome Prenatal Testing
1y ago
Researchers have updated their analysis of publicly reported data on the number of births and lives with Down syndrome in the United States. Though not entirely terrible, that orange bar in the graph above is ominous for future updates. Researchers Gert de Graaf, Frankl Buckley, and Brian Skotko have been performing the yeoman work for ..read more
Down Syndrome Prenatal Testing
1y ago
Without a doubt, in the post-Roe world, Down syndrome abortion ban laws will be upheld. In 2019, the Arkansas state legislature passed into law Ark. Code Sec. 20-16-2103, a law banning abortion where the “pregnant woman is seeking an abortion solely on the basis” of a prenatal test positive for Down syndrome. An area abortion ..read more