Hello, my name is Alexis Stappen I am conducting research through Purdue University Global to obtain a Master’s Degree in Psychology. The purpose of the research is to determine whether there is a relationship between posttraumatic stress symptoms (PTSS) and personality development in adult childhood cancer survivors in comparison to adults who have never had cancer. If you are interested in taking the survey, please click here for more information: https://www.surveymonkey.com/r/5HFQBMS The survey will take about 20-30 minutes of your time. This study will be anonymous, so no one will know t ..read more

Hi my son was diagnosed with hepatoblastoma a type of liver cancer. I was wondering if anyone else has experience this how they treatment went and if they had a transplant how did that go. Just curious/ worried parent. submitted by /u/Nate4268_ [visit reddit] [comments ..read more

Excuse me, I am a relative of a child with leukemia and recently I had to accompany him to one of his chemotherapy sessions, there were times when the pain he felt made him cry or despair and I felt very bad, apart from consulting with the doctor who checked at times how he was doing, I would like to know if you can recommend a way to distract him or help him not to focus on his pain during his sessions. Thank you very much. submitted by /u/usser789_gk [visit reddit] [comments ..read more

Our son was diagnosed with neuroblastoma earlier this year and we’ve rounded out his fourth (and hopefully final) round of chemo. Between rounds we’ve been pretty cautious about going places or having family over unless they’re masked - especially when his ANC was below 500. Our oncologist mentioned that his CBC numbers should normalize a month out from treatment, but his immune system won’t totally be back until 6 months out (no live vaccines until then). I’m wondering how cautious were people post treatment since there’s not really a great blood test to indicate immune system strength past ..read more

Hi everyone! For my thesis, I am working on developing and testing a questionnaire for patients to share how retinoblastoma and/or wearing a prosthetic eye affects their appearance and psychosocial life. If you’re interested, please consider participating and help us test the questionnaire by completing it. You can learn more about the study and what will be asked of you if you decide to participate, and participate through this Twitter post. Eligibility: - At least 8 years old, AND - Received any treatment for retinoblastoma OR - Wear a prosthetic eye Thank you! submitted by /u/corneajo ..read more

Roughly a week ago we noticed an odd reflection in my nine month old baby’s left eye. Fast forward 4x visits, an EUA and an MRI.. my baby was diagnosed with eye cancer, know as retinoblastoma. It has unfortunately advanced to stage E and he has lost vision in his eye. Fortunately, the MRI showed that the cancer didn’t spread to the optic nerve so we may be able to hold off on chemo if we are in the clear. The devistating news, aside from the cancer itself, is that my baby’s beautiful left eye will need to be removed. ? I am equally optimistic, shocked, mad, upset.. anyone here experience this ..read more

Hi everyone, I am a PhD student at Concordia University and I am currently recruiting parents of Canadian children that currently have or previously had cancer to participate in our Beyond Study. The Beyond Study aims to better understand the mental and physical well-being of Canadian youth with cancer, survivors of childhood cancer, and their parents, as well as the impact of the COVID-19 pandemic on their well-being. Participating in the Beyond Study involves an online survey which takes about 20 minutes to complete. Once complete, you will then have the chance to win a $100 Amazon gift car ..read more

Just looking for information/experiences with the diagnosis and ways I can support my friend. Her son was diagnosed this week and he just barely turned 2. He is starting chemo today with planned surgery and bone marrow harvests in the future. He is their only child and they are staying at the hospital with him. My son has a congenital heart defect and despite going through a traumatic hospital stay a year ago, I’m finding it hard to know what to do or say. We’re planning on dropping off meals. Is there anything else that was particularly helpful while you were in the hospital? submitted by ..read more

Hi Everyone, I am a graduate student at Concordia University and we are currently recruiting for our study the Childhood Cancer Identity Project (CCHIP). We are looking for adult survivors of childhood cancer to participate in an online study looking at cancer identity (how you view yourself as a survivor, victim, person who has had cancer, etc.) and mental and physical health outcomes. Our online study is open to people in Canada and the U.S, and should take approximately 40-55 minutes to complete. If you’re interested in participating, email us at [cchip.research@gmail.com](mailto:cchip.res ..read more

Hi all, I started growing my hair out with the intention of donating it to those going through treatment. I’ve heard some places tend to charge patients while others do not. Does anyone have suggestions for organizations who are ethical? What has your experience been like donating? Thanks! :) submitted by /u/dixierun94x [visit reddit] [comments ..read more