Our hearts are full knowing that so many people loved Emmett in 2 different states...and beyond.  We feel the need to hold services for Emmett in both Boston and Albuquerque. Boston   A viewing will be held on Monday, March 2nd from 6:00-8:00 PM at the Lynch-Cantillon Funeral Home at 263 Main St, Woburn, MA 01801. A Memorial Service will be held on Tuesday, March 3rd at 6:30 PM at The Church of Jesus Christ of Latter-Day Saints at 400 Essex St, Lynnfield, MA 01940. Albuquerque A viewing will be held on the evening of Friday, March 6th in Albuquerque, NM (location and time TBD). Emmett's F ..read more

Our Brave Little Lion passed away peacefully on February 24, 2020, exactly eight years after he started his battle with cancer.  He was surrounded by his family.  Information on services will be forthcoming.  If you have memories, photos, or videos you would like to share, please send them to ourbravelittlelion@gmail.com. We are so thankful that Emmett is no longer suffering, though we miss him terribly!  The impression he left on our hearts will endure forever! God bless you Emmett ..read more

Thank you everyone for your prayers after my last post.  Emmett was able to come home from the hospital after five days and we did get some good time at home.  Unfortunately, however, the seizures keep coming.  Things got especially crazy earlier this week, and after imaging showed that Emmett's disease continues to progress in spite of the treatments he's receiving, the doctors recommended keeping Emmett in the hospital on end-of-life care.  And that's where we are right now. We are incredibly thankful for the amazing (almost) eight years we've had since Emmett's diagnosis!  Each day ..read more

Emmett could use your prayers tonight!  He's in the ICU and in rough shape.  While we haven't felt to give a play-by-play, I will share that Emmett has slowly declined the last few months and things have accelerated the past few weeks. I don't know what Father in Heaven's ultimate plan is for our little champion, a soul who has fought so valiantly for so long, but I do know that as long as he's here on earth, I will continue plead with God to spare his life...that we may raise him up to serve the Lord. We welcome everyone to join us in praying for Our Brave Little Lion! Hugs ..read more

On Sunday afternoon we had plans to go to a friend's house dinner.  This friend recently had several loads of dirt dumped in her backyard for landscaping, and the boys were excited to come drive their remote control trucks in the fresh dirt.  When the landscaping company learned that a boy fighting cancer was coming to play in the dirt they dumped, they offered to bring over some of their trucks for the boys to explore and play on. Well, I guess one thing led to another, and word that Emmett was coming over and loved trucks spread quickly across social media over the course of about 3 hours ..read more

Just a quick note to express our sincere appreciation to everyone who joined us in fasting and prayer today petitioning the heavens for the very best they have to offer our precious son.  We wanted to let you know that Emmett felt the strength of those prayers!  This past week he has generally been low energy with the new treatments he started.  But today when we got back from church he was full of life and energy and he spent the afternoon and evening bouncing around from project to project until we finally insisted he go to bed.  He built a large Lego set for his brother Clayton, he decided ..read more

After completing radiation on November 1st, Emmett needed a three week washout period with no treatment before he could start the 8H9 trial in NYC.  He enjoyed having some time off treatment the last few weeks and it was great to see his energy and personality perk back up.  His scan this week had discouraging news, however.  Consequently, he was disqualified from the 8H9 trial (which was supposed to start Monday).  And that leaves us scrambling for something new to use moving forward. The good news is that Emmett is generally still fully functional and so far side effects have been minimal ..read more

Just a quick update to let folks know that we're halfway through radiation treatment for the remaining lesion that hadn't disappeared on the last scan along with the area they removed the tumor from during Emmett's brain surgery.  They decided to do 10 days of fractionated proton radiation to treat the tumor cavity, and then the small lesion will be treated with photon radiation (stereotactic) later next week.  So far Emmett has been tolerating the treatments well. Next week we'll consult with a group that can get Emmett on a clinical trial for a drug called omburtamab which is commonly refer ..read more

The two small lesions that remained after Emmett's brain surgery have reduced in size in the time since Emmett's surgery!  One of them is significantly smaller, and the other one disappeared completely!  The radiation team was planning to treat both of these masses with radiation next week, but now will only treat the one they can still see.  They also plan on treating the cavity from which Dr. Smith removed the main tumor mass. To learn that Emmett's body is responding to the intrathecal therapy he's receiving is so amazing!  We didn't know when we'd see him respond to a medicine again!  We ..read more

Just a quick update to say that Emmett is recovering well and they discharged us from the hospital yesterday.  So that means the doctors are happy with the progress he’s making.  It’s great to be all together as a family again. Thanks for all your prayers, cards, packages, and other well wishes.  We have truly been lifted by so many!  God bless you all ..read more