Lost and Found: What brain injury survivors want you to know:
Anne McGinnis Breen's Brain Tumor Blog
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2y ago
One of our dear Meningimates, Karen Armentani, shared this link from Brainline.org last summer and it says exactly what I still have to deal with every day socially and emotionally since two major craniotomies, first in 1986 and then again in 2000. Please share this handout with your family and friends. Lost & Found: What Brain Injury Survivors Want You to Know I need a lot more rest than I used to. I’m not being lazy. I get physical fatigue as well as a “brain fatigue.” It is very difficult and tiring for my brain to think, process, and organize. Fatigue makes it even harder to thin ..read more
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Recovery from mild brain injury is a process
Anne McGinnis Breen's Brain Tumor Blog
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2y ago
My dear readers, This essay may help you and your loved ones learn to cope with any post treatment effects of brain surgery or brain radiation. I copied and adapted my own remix from the brain injury websites I listed below. A sudden medical crisis, like a stroke or a heart attack, is a brain attack. Any serious brain injury, gun shot wound to the head or brain tumor diagnosis can be like a stroke and requires an amazing ability to embrace extreme contradictions both in the minds of those undergoing treatment and those trying to understand it from afar. In each case and with every different ..read more
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Proptosis- bulging eyeball symptom of meningioma, etc in Grand Rounds presentation 2010
Anne McGinnis Breen's Brain Tumor Blog
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2y ago
My Dear Meningimates around the world, Meningiomas are an international medical issue, not limited to the United States, many of my blog readers are from other countries. I wish I could help get our world leaders more focused on providing better medical health care options for everyone with brain tumors. I came across this link last month and I was completely fascinated by meningioma case details of this woman and other possible causes and diagnoses on page 61 explained by this ENT (eye/nose/throat) doctor in his grand rounds presentation on proptosis. Learning more from the MRI pictures an ..read more
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Limit and Count the lifetime number of your CAT scans and dental xrays
Anne McGinnis Breen's Brain Tumor Blog
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2y ago
My dear Meningimates and our beloved significant others, YOU may remember my frequently shared anecdotal personal medical history about having multiple full mouth dental xrays by three different dentists as a child before I was 19 for regular pediatric dental care, for three years of braces and two broken front teeth in high school and for removal of all my wisdom teeth. Twenty years later in 1986 I was diagnosed with a large lower wing of the left temporal lobe 5 cm grade 2 meningioma primary brain tumor. I believe am still alive, adjusted to my "new normal" and doing well because I freque ..read more
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Towards a Global Ethic in 1993 :an Initial Declaration by Dr Hans Kung and others
Anne McGinnis Breen's Brain Tumor Blog
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2y ago
Towards a Global Ethic: An Initial Declaration is an interfaith community declaration, drafted initially by Dr. Hans Küng, in cooperation with the Council for a Parliament of the World's Religions staff and Trustees and experts. Drawing on many of the world's religious and spiritual traditions, the community declaration identifies four essential human affirmations as shared principles essential to a fair global ethic. Commitment to a culture of non-violence and respect for life Commitment to a culture of solidarity and a just economic order Commitment to a culture of tolerance and a life of t ..read more
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FDA approves Mifepristone for some Cushing's disease symptoms(new brand name Korlym)
Anne McGinnis Breen's Brain Tumor Blog
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2y ago
Here is the link to http://www.fda.gov/NewsEvents/Newsroom/PressAnnouncements/ucm292462.htm Korlym, the new Corcept Inc brand name for Corlux and the old generic Mifepristone might also help anyone with diabetes suffering from a pituitary adenoma brain tumor or a primary brain tumor pressing on the pituitary gland which is the master gland. The FDA News report mentions the word en·dog·e·nous ( n-d j -n s). adj. 1. Produced or growing from within. 2. Originating or produced within an organism, tissue, or cell: Mifepristone or Korlym is now FDA approved for endogenous Cushing's disease. I highly ..read more
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Anne McGinnis Breen's Brain Tumor Blog: Genetic links to meningioma
Anne McGinnis Breen's Brain Tumor Blog
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2y ago
Anne McGinnis Breen's Brain Tumor Blog: Genetic links to meningioma MY dear Meningimates, I'm sharing links to information I wanted to find for my own health and future wellness for me, my siblings and especially my three kids and grandson. I hope I can also help educate you and perhaps we can alert more of our doctors too. I'm hoping these long reports below are not too much information for some at the time of medical treatment crisis. I really do not want to overwhelm anyone about potential genetic risks for our family members either. Surfing around I found these four inherited diseases ..read more
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My House Rep Gabrielle Giffords is recovering quite well from her Aphasia
Anne McGinnis Breen's Brain Tumor Blog
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2y ago
This weekend January 8th our Tucson community is going to be commemorating the tragic mulitple shootings and six deaths, including a federal judge, last year outside my local Safeway grocery store. Memorial events and special activities are scheduled all over town with more than a dozen peaceful community events and prayer services as you can read about here. http://www.kvoa.com/full-coverage/triumph-over-tragedy/ FYI Please find two articles about Gabby's aphasia condition in the MED Page Neurology Gadget in the left side column of my blog. And or check out the Brain Injury Association webs ..read more
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Drugs for unmet needs may soon get faster FDA approval
Anne McGinnis Breen's Brain Tumor Blog
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2y ago
http://www.bloomberg.com/news/2011-11-16/drugs-for-unmet-needs-may-get-faster-approval-under-senate-plan.html A new FDA proposal with drug companies might help more people with meningioma and cancer get Mifeprex like I do in a FDA investigational clinical trial. This proposal might prevent deaths like the tragic story of the real Norma Rae, Crystal Lee Sutton, a union activist who died after a two year struggle with meningioma. There is still no standard chemo for meningioma so insurance companies do not have to pay for any drug therapy for this disease. They delayed paying for any other typ ..read more
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Mifepristone for Meningioma 2004 and 2006 research reports
Anne McGinnis Breen's Brain Tumor Blog
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2y ago
MY dear Meningimates, My main goal is to replace fear with confidence and enough medical knowledge to help the doctors of my dear meningimates, male and female, who want to try a safe effective drug therapy to possibly block low grade meningioma regrowth that has no risks of permanent brain injury or blood clots. I also want women to know it works safely to control and shrink uterine fibroids 50 % without the risks of major abdominal surgery. This detailed longterm use research report of Mifepristone for two female meningioma patients below came out in 2004 and I have a similarly located lef ..read more
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