800 pages full of everything you ever wanted to know!! I feel like these should be handed out with your diagnosis. Like a car manual. submitted by /u/re003 [visit reddit] [comments ..read more

Do you guys usually get refills on prednisone and colchicine? And is your rheumatologist usually not in the office? submitted by /u/Pickapu8888 [visit reddit] [comments ..read more

I have a doctor that wants to advocate SSDI for me. She is taking my condition with my brain seriously and does consider me to be disabled instead of brushing it off. I also believe I may have a lawsuit against the last hospital system due to their lack of treatment and allowing my brain lesion to go untreated. I’m still on high dose steroids and my flare is terrible. I can barely move around, resting rate is around 130, having clots, I’m so exhausted. At 27 all I can do is a couple chores and I’m done. I’ve been killing myself to work full time all these years because I truly thought my lupu ..read more

Hi all. I got some great recommendations from the sub of rheumatologists in the area for my wife, very excited to have an appointment set up! I was hoping to see if anybody could recommend a nephrologist as well. Her current nephrologist really doesn't seem to care all that much, so we're looking to just get that switched over as well. Thanks! submitted by /u/Kitchen_accessories [visit reddit] [comments ..read more

Hi All! I was diagnosed with Lupus around 2013 and have managed to pretty well making adjustments to my life. Lately though it has been a bit more rough and I have had to miss days here and there at work. I think it may be time to protect myself at work. What suggestions do you have for this? What pitfalls should I avoid? Thanks! submitted by /u/LegoGal [visit reddit] [comments ..read more

Does anyone else have nausea and vomiting while taking Cellcept? submitted by /u/Effective-Animator77 [visit reddit] [comments ..read more

So it’s a long story sorry but I’ll try and shorten it. Basically I started having these attacks when I was in my late teens, they started with what felt like a migraine and then after about half an hour/ 40 mins it would travel to my lower back and then eventually it would make it to my lower body and every muscle would hurt and tighten with extreme aches, it felt like I’d been thrown down the stairs, I would get extremely tired and go to sleep shortly after the attack but with it I’d have very vivid dreams that touched too close to reality and they’d end up being nightmares. When I woke up ..read more

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