Yoga, Stress Relief, and Lupus
LupusCorner | Support and Information for those battling Lupus
by Anna Schoenbach
2M ago
Yoga is a stress-relieving exercise that has many potential benefits for people with lupus. Systemic Lupus Erythematosus (SLE) is an autoimmune disease that affects every organ system in the body. Regular exercise can help with many of the symptoms of lupus, especially where it affects the cardiovascular system (including the heart and brain) and mental health, as well as being good for the overall health of the body. You can read more about the cardiovascular risks of lupus here.  However, for many people with lupus, it can be difficult to get enough exercise. Lupus symptoms like joint ..read more
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Men and Lupus: Things to Know
LupusCorner | Support and Information for those battling Lupus
by Georg
2M ago
Men make up 1/10 of people with lupus, and it appears to manifest differently.  Systemic lupus erythematosus (SLE) is an autoimmune condition where the body attacks its own cells throughout the body, leading to a wide range of symptoms.  SLE is well known to affect women and minorities disproportionately. 78% of people with autoimmune disease are female, and of those, about 90% of people with lupus are female.  However, this doesn’t mean that people of all genders and all ethnic groups can’t get lupus! Men are an understudied group when it comes to lupus and autoimmune diseases ..read more
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Fluid Retention and Lupus
LupusCorner | Support and Information for those battling Lupus
by Anna Schoenbach
2M ago
Both the symptoms of lupus and the medications used to treat it can cause fluid retention in the body, usually in the feet or hands. Systemic lupus erythematosus (SLE) is an autoimmune disease that effects organs throughout the body. A common and frustrating symptom is swelling in the joints and extremities which causes pain, discomfort, and can be a blow to the self esteem of a person with lupus. Often, this is actually bodily fluids, mostly water, that the body is holding onto for some reason. It is not unusual for the body to leak some excess fluid – which is not blood but can have some bl ..read more
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Hydration and Lupus
LupusCorner | Support and Information for those battling Lupus
by Anna Schoenbach
5M ago
Water is vital to good health. What does water do for you, and how do you get enough of it? We need water, and quite a bit of it: According to the Mayo Clinic, we need approximately 2.7 liters (for women) to 3.7 liters (for men.) This comes out to about 11.5 cups and 15.5 cups respectively, though it’s a good idea to overshoot this measurement a bit.  Water is a special molecule that is vital for all life on the planet. This is because it is a unique molecule which has properties that enable many chemical reactions to happen. It also is handy for carrying out toxins, protecting and lubri ..read more
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Lupus Flare-Ups and Bacterial Growth in the Gut
LupusCorner | Support and Information for those battling Lupus
by Anna Schoenbach
5M ago
A new study links changes in the gut microbiome to SLE flares. Systemic Lupus Erythematosus (SLE) is an autoimmune disease that affects nearly every organ in the body – Like many other chronic illnesses, the symptoms can fluctuate, sometimes going down to low symptoms before suddenly ‘flaring’ up into an onslaught of pain and organ-related symptoms. These flares are triggered by conditions and are unique to each person. Most people with lupus have a good idea of what will trigger their flares, but flares are notoriously difficult to predict. Flares can last anywhere from 2 days to several week ..read more
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Remission and Lupus
LupusCorner | Support and Information for those battling Lupus
by Anna Schoenbach
9M ago
Although lupus is not a curable disease, it can be treated to the point where people no longer experience symptoms. This is called remission. Remission is a term used to describe the reduction, into nothing, of the symptoms of an autoimmune or chronic disease for three or more years. In lupus, remission includes the symptoms and the blood markers of inflammation as well, so the symptoms are not just being “masked” or “endured.” In an analysis of people with SLE over 32 years, 14.5% of the 532 people were able to achieve complete remission for 3 years.  During remission, people with ..read more
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Tips & Tricks for Cleaning with Lupus
LupusCorner | Support and Information for those battling Lupus
by Anna Schoenbach
9M ago
Cleanliness is good for physical and mental health, but pain and fatigue are obstacles to clean spaces for people with lupus. There are ways to make it easier, though.  Lupus can make it difficult to manage everyday tasks (and age does not make it better! ) Lupus fatigue is a huge reason why sometimes clean-up chores fall by the wayside. Everything feels like it takes so much effort, like you are moving through molasses. Sometimes, it feels as though there is a limited amount of energy available for lupuswarriors, and just existing takes up most of it.  So how can you manage your lup ..read more
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Humidity and Lupus
LupusCorner | Support and Information for those battling Lupus
by Anna Schoenbach
9M ago
Seasonal temperature changes add to the challenges of life with lupus. Humidity plays a role — and it makes hot summer days feel even hotter. Lupus is notoriously challenging to manage. It can seem like almost anything can trigger a flare – as if you didn’t have enough to deal with! Once a personal trigger identified — such as a food or UV light exposure — you can work to avoid it. But changes in humidity, including both dry air and high humidity, can exacerbate symptoms. Every person with lupus reacts to the weather differently. People with lupus find that their symptoms are greatly affected ..read more
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Unique Oral Bacteria in Lupus
LupusCorner | Support and Information for those battling Lupus
by Anna Schoenbach
1y ago
The microbiome – the bacteria, viruses, fungi and other microorganisms that naturally live in the mouth – of people with lupus are unique, even when under treatment. People with lupus have a unique variety of species of bacteria and microorganisms in their mouth. In fact, not only do they have a greater variety of species of oral bacteria living in their mouths, but also different levels of certain types of bacteria. Why is this important? First, it is important to understand that we do not live our lives totally on our own – each one of us carries millions of bacteria, viruses, fungi and othe ..read more
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Over the Counter Medications, Interactions, and Lupus
LupusCorner | Support and Information for those battling Lupus
by Anna Schoenbach
1y ago
Many Lupus Warriors rely on over the counter medications to control their symptoms, but be careful – some may interact with lupus medications. Over the counter medications, also known as OTCs, are legal drugs that can be purchased ‘over the counter’ at local grocery stories or pharmacies without a prescription. These include: Cough Syrup and Cold Medications Stimulants Pain Relievers Motion Sickness Medications Tobacco cessation aids Laxatives These are easily seen and easily purchased, which makes them very useful for people with systemic lupus erythematosus (SLE.) However, while these drug ..read more
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