St. Valentine's Day, Etc.
My Journey Through BC, Cardiomyopathy & Stage IV Breast Cancer ~ LMBC
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1w ago
Enjoying some time in the garden.   St. Valentine's Day came and went this week.  But not without me realizing the connection of hearts, love, and "the heart". I am so thankful for this extended time on our beautiful planet with my amazing family and friends.  You know this is about my 7th life, if I'm not forgetting one.  And I don't take it lightly that I am still here through it all.  But that's a story for another day, or a book titled Lucky the Horse.  Stay tuned, but don't get anxious as I haven't started writing yet, and who knows if I ever will.&n ..read more
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More New Milestones
My Journey Through BC, Cardiomyopathy & Stage IV Breast Cancer ~ LMBC
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2w ago
4 months, or 18 weeks.  Time is moving on from that fateful moment when I was hanging on for dear life by a string. And I am so grateful!   Some new milestones:     I walked to our mailbox and back this week. . I made it!!! ? And for those that don't know our property, the mailbox is not across the street, or in front of our house.  It is down a long gravel, and this time of year very muddy, driveway. I forgot it was all uphill on the way back till we got started. So I huffed and puffed on the return, and took a few breaks, but I made it!   And I found ..read more
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Camping Test ✅
My Journey Through BC, Cardiomyopathy & Stage IV Breast Cancer ~ LMBC
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3w ago
It’s 17 weeks. That’s since Betty became my sidekick.  The days and weeks keep coming and going and I keep getting stronger. This is all so good and welcome.  In my last post, I mentioned that we would be camping soon, that I was a bit anxious about doing so with the new me, and that it would be a good test for future excursions.  Well, I’m happy to say it was a huge success. One of the big challenges was me, and Betty (my LVAD). I have eight large batteries that I live with and there is a pretty good size charger that is required to keep all these batteries charged. The char ..read more
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Plugging Along; Fun Stuff & A Day in the Life
My Journey Through BC, Cardiomyopathy & Stage IV Breast Cancer ~ LMBC
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1M ago
It’s mid-January and not much has changed. I do continue to progress slowly, but I think I’m being impatient. The hard part is the rainy weather, my changed mobility and lifestyle, and just wanting to sit and knit, or do whatever, most of the time.  But have I mentioned how much better my sleep is. When I returned home from the hospital, I could barely get two hours of sleep at night before my mind would start churning. It got to the point where I could sleep till maybe midnight and then I would start waking up every few minutes or half hour, feeling like I had slept for hours. But when ..read more
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Hip Hip Hooray for 2024
My Journey Through BC, Cardiomyopathy & Stage IV Breast Cancer ~ LMBC
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1M ago
13 weeks on 1/3. I think that has a nice ring to it. 13 Weeks post LVAD surgery. And each week feels a bit better from the last.  Today I had a substitute caregiver and shower assistant — Sarah. She gave Mark a huge break by helping me to shower and do it safely ( it is quite an ordeal to keep me and my LVAD safe and dry), take my daily vitals and send them off to our team, and do my sterile dressing change, which is another involved task that is performed every 1-3 days based on need. She’s always a pleasure to be here and spend time with.  Since my last update we’ve had some vi ..read more
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HAPPY NEW YEAR
My Journey Through BC, Cardiomyopathy & Stage IV Breast Cancer ~ LMBC
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2M ago
12 Weeks Post Surgery I’ve reached a new milestone. And I’m happy and very grateful to be here. Thank you all for the love and support. This is not easy and is so different than what people realize until they see me in person. But don’t we all carry something that is challenging and makes us work harder and often wonder how we got here. One step after the other, one day after another. It’s what we do! Holidays We had a lovely Christmas. Our grandson had his  winter concert. He goes to Woodland Star, which relocated this past Fall to Dunbar campus, his grandpa, mom’s and aunts Alma May ..read more
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Christmas is Comng & Good Progress Since LVAD Implant Surgery
My Journey Through BC, Cardiomyopathy & Stage IV Breast Cancer ~ LMBC
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2M ago
December 13th marks two months home since my LVAD implant surgery.  The Christmas tree is up and decorated. Snow globes from nearly every year of our marriage are out on display on the mantle.  The knitted gnomes have come to the living room to join us for the holidays. And a few other decorations are out. Some decorations were left back this year, but the house is festive and I’m happy. And we have big blowup gnomes in the yard, plus our large lighted wreath is back on the gate as of today.                 I saw my local cardiologis ..read more
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2 Months Out from LVAD Surgery
My Journey Through BC, Cardiomyopathy & Stage IV Breast Cancer ~ LMBC
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3M ago
It’s hard to believe that it’s been a full two months come tomorrow, November 29th, since LVAD surgery, and my life (our lives) changed pretty drastically. Although without the LVAD, it would’ve changed even more drastically. I realize  this every day when I am down. And my family does too.  I/We have much to be thankful for.    Thanksgiving was quiet, and very different. But it was fine considering how Mark and I were still “treading water”  to get a handle on our new lives. But we had a nice visit from Sarah and family to deliver us a meal from Whole Foods, which wa ..read more
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7 Weeks, New Surgery, Alarms & Pies, oh my.
My Journey Through BC, Cardiomyopathy & Stage IV Breast Cancer ~ LMBC
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3M ago
November 22nd marked the  seven week anniversary of my new heart via LVAD surgery. And I think I can finally say that every day is progress to more independence and strength. The down days where I am wondering if I ever will improve or get back to being as active as I was, are looking more hopeful.  Last Thursday I had my 6 week follow up and first visit back to UCSF. Mark, Sarah and I met with both the head of the cardiac LVAD department and my surgeon, as well as Silvie, one of the the NPs in charge of me and all LVAD patients. They are on a 24/7 hotline available to us and we tal ..read more
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5 Week Anniversary
My Journey Through BC, Cardiomyopathy & Stage IV Breast Cancer ~ LMBC
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3M ago
Five week anniversary since LVAD implantation.  2 steps forward, 1 step back.  Breakfast of champions, oatmeal, loads of pills, and a belly injection to get my blood coagulation back on track. I am on blood thinners and there is a fine balance to keep it right for the LVAD to prevent clotting. Some green leafy foods can throw it off.  This week has been challenging. It’s hard doing anything. The mind is there- I get up and out of my chair very easily now., move around the house without a walker (not outside though). But I am so labored and winded when I get to where ..read more
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