D4Dementia has moved!
D4Dementia
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4y ago
Please visit: http://www.d4dementia.com If you subscribe to my blog, please re-subscribe on the new website, thank you ..read more
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Coronavirus and being isolated from a loved one
D4Dementia
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4y ago
Last month I wrote about the coronavirus pandemic and answered two questions families supporting a loved one are grappling with: How do we hand-wash more and how do we self-isolate? For families who aren’t in the same household, however, they are living through many weeks, which may potentially become months, without physically seeing their loved ones. If a family member is in a care home that isolation period may be the longest any of us experience, since care homes are - as we have seen - incredibly vulnerable to coronavirus outbreaks.  Indeed, the impact of coronavirus on care homes ..read more
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Coronavirus and living with dementia - Coping in unprecedented times
D4Dementia
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4y ago
It’s not easy to know where to begin with a blog on the current monumentally uncertain times that the world is facing, but I’m going to attempt to address the coronavirus disaster (I don’t think the word crisis goes far enough) in this and subsequent blogs as we all try to adjust to the unprecedented circumstances we find ourselves in. Firstly, way back (well it seems like a long time ago now!) when we first heard about this virus in December and as it escalated into January, it frightened me. Reports of the pneumonia it causes sent a shudder through me with vivid recollections of how my fat ..read more
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Who is really challenging?
D4Dementia
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4y ago
As regular readers of D4Dementia will know, I’ve long been a supporter (including through the National Dementia Action Alliance Campaign 'Dementia Words Matter') of using respectful language - as defined by people living with dementia - when communicating about dementia. I believe that from language comes attitudes, and of course how people are treated is then heavily influenced by those attitudes. So, in short, it's about more than just words. Sadly, since I (and many others) have been banging this drum nowhere near enough has changed. I’ve mostly given up with the sensationalised headlin ..read more
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Bothered and bewildered by the portrayal of dementia
D4Dementia
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4y ago
The portrayal of dementia on TV and in the arts has undoubtedly risen since my dad was living with dementia. From major soaps to numerous stage plays, dementia - it seems - is popular subject matter. I’m not against portraying dementia when it’s done in a fair and equitable way that, crucially, educates. When I say educates, however, I don’t mean in the usual awareness-raising way, or by opting for the predictably negative portrayal that is perhaps most closely associated with dementia on TV or in the arts. My biggest gripe against the Oscar-winning Still Alice was the total omission of a ..read more
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Resolve to ask people with dementia what THEY want
D4Dementia
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4y ago
With over 200 blogs on D4Dementia, some of them now 7 years old, I've decided to spend my 2019 year of blogging by re-visiting some of the topics I’ve covered previously, throwing fresh light on why they remain relevant, and updating them with some of my more recent experiences. For my last blog of 2019, I want to look at how we listen to and respect the viewpoints of people with dementia. In July 2015, I wrote a blog post entitled: 'Why don't we listen to people with dementia?'. In that blog I said: “If we are ever to move beyond stigma and discrimination and towards a truly world-class ..read more
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Together we can do SO much
D4Dementia
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4y ago
With over 200 blogs on D4Dementia, some of them now 7 years old, I've decided to spend my 2019 year of blogging by re-visiting some of the topics I’ve covered previously, throwing fresh light on why they remain relevant, and updating them with some of my more recent experiences. This month, I want to look at improving care and support. In October 2014, I wrote a blog entitled 'Inspiring end-of-life care'. In that blog I talked about my experience of speaking at the Alzheimer Europe Conference about my dad’s end of life care: “I hope that the standing ovation my presentation received is p ..read more
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Being a good listener
D4Dementia
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4y ago
With over 200 blogs on D4Dementia, some of them now 7 years old, I've decided to spend my 2019 year of blogging by re-visiting some of the topics I’ve covered previously, throwing fresh light on why they remain relevant and updating them with some of my more recent experiences. This month, I want to look at the communication skill of listening. I’ve written about communication a lot on D4Dementia, most recently in my January 2019 post, 'Communication - It's more than just words'. In that blog I highlighted non-verbal communication skills and observation as two important facets of effective c ..read more
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Myths and lessons
D4Dementia
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4y ago
With over 200 blogs on D4Dementia, some of them now 7 years old, I've decided to spend my 2019 year of blogging by re-visiting some of the topics I’ve covered previously, throwing fresh light on why they remain relevant, and updating them with some of my more recent experiences. This month, I want to look at awareness. My first D4Dementia World Alzheimer’s Month blog in September 2012 was entitled, ‘So how much do you know about dementia?’ In the blog, which remains one of my most popular to date, I sought to bust myths about dementia and talk about what dementia had taught me. The myth-bust ..read more
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What right do you have?
D4Dementia
by
4y ago
With over 200 blogs on D4Dementia, some of them now 7 years old, I've decided to spend my 2019 year of blogging by re-visiting some of the topics I’ve covered previously, throwing fresh light on why they remain relevant, and updating them with some of my more recent experiences. This month, I want to look at human rights and sectioning. Back in December 2017, I wrote ‘Resolve to embrace human rights’, which outlined basic human rights, the framework for making decisions and the principles that govern a human rights based approach. In that blog, I said: “I talk about human rights during m ..read more
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