Crohn's Disease Forum
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Welcome to Crohn's Forum, a support group for people with all forms of inflammatory bowel diseases. Communicate with others and discuss and share your stories about Crohn's disease, ulcerative colitis, and other forms of IBD.
Crohn's Disease Forum
19h ago
The most recent lab results for my son (15yrs) were conflicting & even the doctor to an extent was surprised. Wanted to see if anyone here had similar experience and have recommendation for next steps
Blood work - all numbers within normal range
ESR - 4
CRP - 2
Hemoglobin - 13.5
CBC - all normal
General health - does everything what a 15 yr old does....sports, studies etc...
Weight - Steady. No drop.
What confused us is the Calprotectin number which was...
Conflicting lab results ..read more
Crohn's Disease Forum
22h ago
Hi I've started Seroquel(QUETIAPINE) to help with sleep and overactive mind at night and it seems to be causing a little ballooning and looser output at night ,
It's quite effective at helping me sleep and having pleasant dreams so far ,so that's good ,
Hoping it will settle down after a few weeks but kinda worried about having a blow out because of the extra air and looser output ,
Would love to hear if anyone else has used this drug before ,
Feel free to dm me if you don't want to reply...
Seroquel Causing Loose Output ..read more
Crohn's Disease Forum
2d ago
Hi my daughter was prescribed Humira for Crohn, we did not start treatment yet because Im leaving overseas next month for 10 weeks. I was fighting with insurance to get 3 month vacational supply and unfortunately they cant give me more then month supply so therefore I cant start her on Humira because I wuld have to interupt the treatment. It is sux but I have no choice. To ship med overseas refrigerated wuld be fortune and when asked fedex they said shipping meds is prohibited. so now any...
other crohn treatment besides biologic just temporaly ..read more
Crohn's Disease Forum
2d ago
The AGA has issued new GI practice guidelines for diet and nutritional therapies for IBD:
The Guideline:
https://www.gastrojournal.org/action/showPdf?pii=S0016-5085(23)05597-X
Summary:
A Starting Point
First, the panelists advise that, unless contraindicated, all patients with IBD follow a Mediterranean diet while minimizing salt, sugar, and ultraprocessed foods.
Patients with symptomatic...
New AGA Guideline for Diet and Nutritional Therapies for IBD ..read more
Crohn's Disease Forum
2d ago
people in my life that i personally know and have been involved with correcting their suffering -- all of these in the last two-ish years. almost every one of these tried medical first, with poor/no results. i'm not including the people i've helped on the internet.
me - ibd symptoms disappeared, severe inflammatory arthritis vanished
male, age 30 - psoriasis disappeared. poor guy had been fighting it for 20+ years
female, age 52 - lactose intolerance disappeared, allergies reduced...
personal success stories with gut health protocols ..read more
Crohn's Disease Forum
3d ago
does anyone follow any reararch about Crohn treatment? Looking reliable sources of if there is any potentional drug that wuld eventually heal crohn ..read more
Crohn's Disease Forum
4d ago
read quite a few of these studies/trials about b. infantis supplementing of babies. i'm seeing strong results in getting a pioneer base of bifids going in their guts. early term babies really showed well in their trial. baby dysbiosis is a thing.
b. infantis sounds like best of breed solution for that and for establishing a good gut.
baby gut dysbiosis sets one up for a wide range of issues, including ibd
b. longum is a close cousin and it has some good pubmed stuff too. it's...
b. infantis for baby guts ..read more
Crohn's Disease Forum
4d ago
I'm been doing a little research on short-chain fatty acids and specifically butyrate (one of them). It turns out that impaired oxidation of butyrate may play a role in Ulcerative Colitis and both butyrate enemas and diets designed to increase butyrate production have helped UC patients (click through the links above for more information and the studies/sources).
Has anyone here been given butyrate enemas or had any of this...
Short-chain fatty acids, butyrate, and Ulcerative Colitis ..read more
Crohn's Disease Forum
4d ago
Hi Everyone, I am new here. Just wanted to tell my story quickly. I was diagnosed with Crohn's disease in 2009. I suffered with it for a year before I went in for help because I didn't have health insurance.(Husband is self employed and insurance was too expensive for us at the time) But when I got diagnosed, I didn't want to believe it. I also didn't want to take the drugs. I figured that there had to be some natural way to make it go away. So I tried taking...
Newbie in remission using Inulin ..read more
Crohn's Disease Forum
4d ago
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7954989/
Methotrexate impacts conserved pathways in diverse human gut bacteria leading to decreased host immune activation
We show that MTX broadly alters the human gut microbiota. Drug sensitivity varied across strains but the mechanism of action against DHFR appears conserved between mammalian and bacterial cells. RA patient microbiotas were sensitive to MTX and changes in gut bacterial taxa and...
methotrexate, inflectra, remicade are drugs for dysbiosis ..read more