Has anyones doctor gone back and forth on a diagnosis? I was in the ER recently for severe and painful black diarrhea that lasted weeks. They told me I did NOT have an infection but that I did have colitis and ileitis from a CT scan. They told me I dont have IBS either and need to be seen for crohns. My initial appointment with my GI dr was decent and he agreed that even if the colonoscopy didnt show anything that he would treat me for crohns as it can be hard to diagnose. My colonoscopy/endoscopy was normal, I ask the day of colonoscopy for a pill cam, he agrees. At my follow up appointment ..read more

Hi guys! I first wanted to thank you all for the amount of support so many of you guys have shown me on my threads about my 6 year old. It seriously means so much to me and her. And a little update: Nora was hospitalized Wednesday, prepped on Thursday, and had her scope around noon today. She’s doing great. This girl was ALL smiles and giggles heading into the OR, you would’ve thought we were sending her to Disney :) Her GI came out afterwards and told me that while things do look improved (yay!), unfortunately not enough to keep her on the Entyvio clinical trial. He is recommending Rinvoq or ..read more

36m I had no symptoms my whole life except occasional straining and rectal bleeding during BM which an urgent care doctor said years ago was just hemroids. I went to see a gastro last week as it periodically came back every few months and I got concerned. I Got a colonoscopy and the doctor said it looks like crohns. He seemed very confident. I got the biopsy results above. Would the results specifically say crohns? He still seems to think it is but wants me to get an MRI and another scope in a month. I’ve since gone gluten free and cut out drinking and caffeine. Actually feel great but I ..read more

Hi ! Recently I moved to other state I had humira shot last week no more left I need to find a new doctor and PA for humira Insurance change There is a way to bring the prescription from old doctor to new doctor ? Humira works for me so i want to keep getting humira submitted by /u/teirokuu [visit reddit] [comments ..read more

I'm doing wonderful on budesonide. I have enough for May, June and July . After that I don't know what will happen . I haven't got an appointment with the GI specialist yet . Wait time is very long to get an appointment . At the end of August I have to go our of town for MRI for 2 days . How is that even gonna work? I had diarrhea for 2 months sometime 3-5 times a day ( would have been more but I also lost my appetite so I stopped eating ) with not much warning . I assume once I stop the budesonide the diarrhea will come back right? so how in the world will I be able to be travel out of town ..read more

Hello everyone! Sorry if this isn't the place for this type of question, but I can't seem to find any information asap. I had some digestive problems in the past, but nothing to be concerned about. Fast forward to two days ago, when I got a bit constipated but didn't think to much of it until today, when I went to the bathroom and there was blood everywhere. I of course, panicked. I reached for some medicine so I can finally go and I just kept on bleeding, a lot, and I felt sick and dizzy. (TW to this part) I also noticed loads of blood clots, some bigger, some smaller. Of course I made an ap ..read more

So I have crohns disease, and i've had a ROUGH time since I was diagnosed at 15 in 2015. I've failed multiple medications, i've had a toxicity due to a medication and almost died and was hospitalized. Recently we found a medication that on paper seems to recude my inflammation, BUT my symptoms are AS BAD, and i've had new symptoms appear, which I HAVE NO IDEA if are related to crohns because I'm not a doctor. I have a rheum who does NOTHING and tests for nothing because he's a bad doctor but that's another story, I saw a doctor in ER who couldn't believe at the suboptimal care he has given me ..read more

Hi, I don't have Chron's myself, but a Co-worker's mom recently got diagnosed, and they're both having a really rough time of it. I want to do something for them, but usually I'd bake, and I know very little about Chron's mostly just that there are dietary restrictions (Not which ones, though probably Gluten). I was hoping for any suggestions anyone might have because I don't want to upset, offend or waste anyone's time. submitted by /u/Sad-Ad-6303 [visit reddit] [comments ..read more

It’s so incredibly itchy right now & im trying so hard not to scratch it. I took my second does two days ago and put a bandaid over it, but it’s quite itchy & it blistered a little bit. My first two injection sites were okay, but I didn’t use a bandaid last time. Could that be why? I also injected into my stomach again so I’m wondering if that could have caused irritation, as well… any tips that works for everyone for itchiness? Feels like a mosquito bite, but its super itchy anything my clothes rubs against it. submitted by /u/bananaonpizzaa [visit reddit] [comments ..read more

So my results came back from my colonoscopy. I was told I have Crohn’s but I don’t understand the results Terminal Ileum -focal active enteritis -villous blunting -prominent aggregates Cecum/ascending -focal active colitis -basal plasmacytosis -prominent lymphoid aggregates Colon, transverse -focal active colitis -basal plasmacytosis -prominent lymphoid aggregates Colon descending -focal active colitis -basal plasmacytosis - paneth cell hyperplasia - prominent lymphoid aggregates submitted by /u/TacosForTheTacoLord [visit reddit] [comments ..read more