As we started our week, Parker and I began to joke that we were ready to take on “Parker’s Medical Marathon”….He had 7 medical appointments at Shands UF Health.  Last week was totally exhausting with some good news and some not so good news.  We are processing everything and Parker has a lot more appointments in the future.  The glorious news is there is no tethering on his spinal cord; so there's no urgent surgery needed, and he can go to the JA Conference.   We really needed this small miracle.  He does have some spinal damage (35% curvature with scoliosis), swelling with ligaments/tendons ..read more