Do daytime “sleep attacks” leave you dreaming about a better treatment for narcolepsy?
Wake Up Narcolepsy
by Chris DavisAdvertising
1d ago
SUVN‑G3031 study: Clinical Trial Listing Do you have excessive daytime sleepiness from narcolepsy? You may be interested to learn about SUVN-G3031, a research study evaluating an investigational product for narcolepsy with and without cataplexy.   Do daytime “sleep attacks” leave you dreaming about a better treatment for narcolepsy? Do you have excessive daytime sleepiness from narcolepsy? You may be interested to learn about SUVN-G3031, a research study evaluating an investigational product for narcolepsy with and without cataplexy. Currently, there are treatments available that can ..read more
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Recruiting Participants with Excessive Sleepiness
Wake Up Narcolepsy
by Chris DavisAdvertising
1d ago
WUN is collaborating with Hypersomnia Foundation and Dr. Thanh Dang-Vu to investigate brain regions underlying narcolepsy (with or without cataplexy) and idiopathic hypersomnia. Who can participate: We are looking for patients 18 years or more who have been diagnosed with Narcolepsy (with or without cataplexy) or Idiopathic Hypersomnia. What are the factors that may exclude you from participating? 1- Other sleep disorders, 2- Neurological disorders or head trauma, 3-Psychiatric disorders or use of psychotropic drugs, 4- Pregnancy or breastfeeding and 5-Pacema ..read more
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Hypersomnia and Narcolepsy Study is Recruiting Participants
Wake Up Narcolepsy
by Chris DavisAdvertising
1d ago
There is a new clinical trial opportunity for PWNs located in Canada. To be eligible to participate, you must meet the following criteria: Diagnosed with narcolepsy and/or idiopathic hypersomnia Age between 18-64 Living in Canada Ability to travel to Montreal Have no other sleep disorders Have no psychiatric or neurological disorders Not pregnant or breastfeeding No use of psychotropic drugs Eligible for an MRI scan (no pacemaker or metallic prosthesis) Compensation will be offered for participation. To apply please contact: hypersomnia.research@gmail.com English Flyer | French Fl ..read more
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INTUNE: A Clinical Study in Adults with Idiopathic Hypersomnia (IH)
Wake Up Narcolepsy
by Chris DavisAdvertising
1d ago
NOW ENROLLING for adults with IH: CLICK HERE The INTUNE study is being conducted by Harmony Biosciences to evaluate the safety and efficacy of pitolisant, an investigational medication for treating excessive daytime sleepiness (EDS) in people with idiopathic hypersomnia age ≥18 years. This study is also evaluating the effect of pitolisant on overall symptoms and severity of IH, sleep inertia, cognition, and general sleep-related impairment. This clinical study consists of a screening period (up to 28 days), an 8-week Open-Label Phase in which all eligible study participants will receive ..read more
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Risk Evaluation and Mitigation Strategy (REMS) Programs to Promote Appropriate Medication Use and Knowledge: Patient Experiences with REMS Programs
Wake Up Narcolepsy
by Chris DavisAdvertising
1d ago
We are inviting you to participate in a research study, which will involve you sitting for an approximately hour-long interview. Your participation is voluntary, and you may stop at any time. The purpose of the research study is to understand the benefits and burdens of risk evaluation and mitigation strategy (REMS) programs, which the Food and Drug Administration (FDA) requires manufacturers of certain medications to implement. We are asking you to participate because you contacted us as someone who started taking sodium oxybate (Xyrem/Xywav)—a REMS program-covered drug—in the past three yea ..read more
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CATNAP® Pediatric Narcolepsy Registry
Wake Up Narcolepsy
by Chris DavisAdvertising
1d ago
Children and adolescents with pediatric narcolepsy and their caregivers can now take part in a patient registry to help researchers and clinicians better understand the condition.  The Children, Adolescents, and their providers: the Narcolepsy Assessment Partnership (CATNAP®) pediatric narcolepsy disease registry collects important health and quality of life information to: Better understand pediatric narcolepsy, including the initial diagnosis and natural disease course Study ways to improve treatments and outcomes for patients Learn more about the impact o ..read more
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Recruiting Participants for the SYMPHONY Study
Wake Up Narcolepsy
by Chris DavisAdvertising
1d ago
Falling asleep during the day? Sudden muscle weakness? WUN is collaborating with Axsome Therapeutics on a study to assess the efficacy and safety of AXS-12 (Reboxetine) in patients with narcolepsy (SYMPHONY) What is the SYMPHONY Study? The SYMPHONY Study is a clinical research trial currently being conducted at select centers in the US and Canada. The study is for people with narcolepsy who are experiencing excessive daytime sleepiness (EDS) and cataplexy (sudden muscle weakness). The SYMPHONY Study is evaluating AXS-12 (reboxetine) as an investigational oral medication that may improve wakefu ..read more
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Northwestern EXPLAIN Study
Wake Up Narcolepsy
by Chris DavisAdvertising
1d ago
Register or learn more: https://redcap.link/explain The post Northwestern EXPLAIN Study appeared first on Wake Up Narcolepsy ..read more
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She Won’t Let Narcolepsy Hold Her Back: Maxine Parr’s Narcolepsy Journey
Wake Up Narcolepsy
by Chris DavisAdvertising
1w ago
At twenty three years of age, Maxine Parr is quite an impressive young adult. She has earned her bachelor’s degree from The University of Texas at Austin in biochemistry with a pre-health certificate. She is a successful athlete, having participated in numerous sports including division I rowing while in college, and since graduating in 2021, she now works full time as a registered behavior technician helping children with autism. She even has her eyes set on graduate school already and is hoping to study applied behavior analysis which will allow her to provide even better care to the kids sh ..read more
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Dozed and Confused: Tales from a Nutty, Narcoleptic Life, by Carl Kozlowski
Wake Up Narcolepsy
by Chris DavisAdvertising
2w ago
I lost nearly two decades of my life to severe sleep disorders that rendered me diagnosed by doctors as “virtually narcoleptic.” But one way I’ve made it through the frustrations wrought by the condition is that I always managed to find something to laugh about. That’s because I dealt with the immense challenges of falling asleep anytime, anywhere with a sense of humor, as during the worst of it I was living in Los Angeles. I had moved there to pursue a career as a professional standup comic, humor writer and entertainment journalist. So there I was, living in the Car Capitol of the World but ..read more
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