Exciting Partnership Announcement & Sleep Awareness Week® Live Q&A
Wake Up Narcolepsy
by Cara Weaver
2h ago
  Vincent Arthur is an iRacing eSports and Carolina Pro Late Model Series Driver living with Narcolepsy. Every Tuesday at 8:30pm ET, he competes in an online racing series called the National Oval Racing Association Cup Series. The races in this series are broadcast live on YouTube and the season kicks off today, February 20th! Last season, Arthur was the most dominant driver, tallying 11 wins, 21 top 5s, and 26 top 10s in 31 races. For the 2024 NORA Cup Series, Wake Up Narcolepsy (WUN) has partnered with Vincent to spread Narcolepsy awareness as he races! The car features WUN colors and ..read more
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Future Neurology Plain Language Summary (PLS) “Low Sodium Oxybate Improved Symptoms in Adults with Narcolepsy with Cataplexy”
Wake Up Narcolepsy
by Cara Weaver
5d ago
Richard K Bogan, Nancy Foldvary-Schaefer, Wayne Macfadden, Monica Gow and Michael J Thorpy “This plain language summary describes a clinical study that looked at the effects of a medicine called low-sodium oxybate (or LXB; XYWAV® [calcium, magnesium, potassium, and sodium oxybates]) in adults with narcolepsy. Narcolepsy is a rare brain disorder that can make people feel extremely sleepy during the day or have symptoms like cataplexy, which is sudden and temporary muscle weakness. This study compared changes in symptoms between people who either switched to placebo or continued with LXB after t ..read more
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Takeda Intends to Rapidly Initiate the First Global Phase 3 Trials of TAK-861, an Oral Orexin Agonist, in Narcolepsy Type 1 in 2024
Wake Up Narcolepsy
by Cara Weaver
1w ago
OSAKA, Japan, and CAMBRIDGE, Massachusetts, February 8, 2024 – Takeda (TSE:4502/NYSE:TAK) today announced positive topline results from a randomized, double-blind, placebo-controlled, multiple dose Phase 2b trial evaluating TAK-861, an oral orexin receptor 2 (OX2R) agonist, in patients with narcolepsy type 1.   Read full statement here. The post Takeda Intends to Rapidly Initiate the First Global Phase 3 Trials of TAK-861, an Oral Orexin Agonist, in Narcolepsy Type 1 in 2024 appeared first on Wake Up Narcolepsy ..read more
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Announcement of 2024 Sleep Awareness Week® Contest – #NarcolepsyInSixWords
Wake Up Narcolepsy
by Cara Weaver
1w ago
Sleep Awareness Week® 2024 is taking place March 10th – 16th and Wake Up Narcolepsy (WUN) has lots in store!  Each year, WUN holds a contest to raise awareness about Narcolepsy, with a public vote to decide on the winner and prizes. This year, a familiar favorite is coming back. The contest will be #NarcolepsyInSixWords! Submissions are welcomed starting today, February 8th, and going through March 4th. The contest is open to people living with Narcolepsy and their loved ones! To enter, all you have to do is send an email to sleepweek@wakeupnarcolepsy.org by the deadline with: Your name ..read more
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The Value of Narcolepsy Support Groups
Wake Up Narcolepsy
by Cara Weaver
1w ago
by Tatiana Corbitt Welcome back to Narcolepsy Perspectives: A blog about anything & everything Narcolepsy! When my Narcolepsy Type One (Narcolepsy with Cataplexy) symptoms began in my early 20’s, I immediately knew something was very wrong. I could brush off the extreme tiredness at first, claiming that my new need for excessive naps was due to the viral illness that I was recovering from at the time. It wasn’t until I started falling asleep behind the wheel after mere seconds of driving that I started to panic. Then, the cataplexy set in. By the time the full extent of my Narcolepsy sympt ..read more
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Black History Month 2024 – Celebrating Neurology Leaders
Wake Up Narcolepsy
by Cara Weaver
2w ago
In celebration of Black History Month, Wake Up Narcolepsy (WUN) would like to recognize some leaders that have had immeasurable impacts on the medical world. Specifically, we’d like to focus on neurology, given that Narcolepsy is a disorder of the central nervous system. To hear a clinical perspective on Black History Month, check out Neurology Live’s article with Jennifer Adrissi, MD by Marco Meglio. They talk about pioneers that have made large strides, but also the challenges still present. Dr. Adrissi says “Black neurologists are very underrepresented. It is my personal and professional vi ..read more
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Webpage Launch for American Heart Month – February
Wake Up Narcolepsy
by Cara Weaver
2w ago
February is American Heart Month and Wake Up Narcolepsy (WUN) is raising awareness by launching the new webpage, Narcolepsy & Heart Health!  In November of 2023, WUN announced a partnership with American Heart Association (AHA) for their Cardiovascular Health & Sleep Initiative!  The new webpage has highlights of the amazing resources made available by the AHA, including the recent scientific statement, “Impact of Sleep Disorders and Disturbed Sleep on Brain Health,” fact sheets and discussion guides.  Sleep and cardiovascular health go hand in hand and educating oneself ..read more
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Narcolepsy and Physical Activity Survey – Grand State Valley University
Wake Up Narcolepsy
by Cara Weaver
3w ago
Looking for participants with narcolepsy to complete a survey for a graduate study: Narcolepsy & Physical Activity Survey Purpose of the study: This research study aims to look at whether physical activity has an effect on levels of excessive daytime sleepiness for individuals with narcolepsy types 1 and 2. Physical activity is highly recommended to improve quality of life for a wide variety of populations, and for healthy individuals. There is little research that looks at the effect of physical activity for people with narcolepsy. This study will also look at what types of physical activ ..read more
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Wake Up Narcolepsy Announces Apparel Shop Reopening
Wake Up Narcolepsy
by Cara Weaver
3w ago
Looking for creative ways to spread Narcolepsy awareness? Check out Wake Up Narcolepsy (WUN) Awareness Apparel! The shop on Bonfire is back with familiar favorites and new designs. The beloved Good at Naps and Clinically Tired collections are back and 15th anniversary products are available for the first time.  Check out the array of hoodies, crewnecks, tee shirts, long sleeves, hats and mugs! Sizes for products range from S – 5XL and youth options. By purchasing, you’re helping fund 2024 WUN programs while also spreading Narcolepsy awareness through stylish apparel! The apparel is shipp ..read more
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Join Us for February’s Brown Bag Webinar with Dr. Scammell – Narcolepsy 101
Wake Up Narcolepsy
by Cara Weaver
1M ago
The first of Wake Up Narcolepsy’s 2024 Brown Bag Webinars will be “Narcolepsy 101” by Thomas Scammell, MD, on February 8th at 2pm ET. We would love to see you there! This presentation will be valuable for any person with Narcolepsy or a loved one, no matter what point you are in your journey. This is a great opportunity to “ask the expert.” Questions are welcome and answered live by Dr. Scammell. Register now here! Learn more about the upcoming webinars here. Thomas Scammell, MD is a Professor of Neurology at Harvard Medical School, Beth Israel Deaconess Medical Center, and Boston Children’s H ..read more
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