What would it mean to me if there was a cure for Parkinson’s?
Mariëtte Robijn » Parkinson’s
by marietterobijn
2y ago
Mariette Robijn A Parkinson’s charity (dedicated to finding a cure for Parkinson’s) wanted to know what a cure for Parkinson’s would mean to us people with Parkinson’s.  I’m sure that they asked this question out of genuine interest. And I’m sure that the question was well-intended. In fact, I’m positive about that. But after 8 years of […] The post What would it mean to me if there was a cure for Parkinson’s? appeared first on MarietteRobijn.com ..read more
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You (don’t) see what you’re missing (video)
Mariëtte Robijn » Parkinson’s
by marietterobijn
2y ago
Mariette Robijn Spoken blog about the things you miss that break your heart. With subtitles (click on right bottom icon) The post You (don’t) see what you’re missing (video) appeared first on MarietteRobijn.com ..read more
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Ah I know someone with glasses like that _ spoken blog
Mariëtte Robijn » Parkinson’s
by marietterobijn
2y ago
Mariette Robijn The post Ah I know someone with glasses like that _ spoken blog appeared first on MarietteRobijn.com ..read more
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Parkinson’s – the least of my problems
Mariëtte Robijn » Parkinson’s
by marietterobijn
2y ago
Mariette Robijn Your life consists of good and not good. Regardless of whether that’s self-induced or caused by someone or something else. Sometimes it can hover between the two, sort of semi-good. But mostly it’s simply good or not good. From ‘everything is good’ to ‘everything is most certainly not good’ If you’re diagnosed with Parkinson’s when […] The post Parkinson’s – the least of my problems appeared first on MarietteRobijn.com ..read more
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#theyhavedifficultydualtasking #Parkinsons #therapist
Mariëtte Robijn » Parkinson’s
by marietterobijn
2y ago
Mariette Robijn  “So, you have to get them to do exercises, where they have to perform two or more tasks simultaneously. This trains their brains, because this type of thing isn’t easy for these people, you know. It’s nothing to worry about, but you do have to know how to deal with them. You’ll also start to […] The post #theyhavedifficultydualtasking #Parkinsons #therapist appeared first on MarietteRobijn.com ..read more
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Finishing what I didn’t begin.
Mariëtte Robijn » Parkinson’s
by marietterobijn
2y ago
Mariette Robijn The title says it all. You could skip the entire blog, because you already get it. It feels great to finish something that you began. Something that you chose for yourself, something that’s truly yours. I finished my education, chose my husband (and husband chose me), bought a house, had some children (not that there’s […] The post Finishing what I didn’t begin. appeared first on MarietteRobijn.com ..read more
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So, what fun things have you been up to lately?
Mariëtte Robijn » Parkinson’s
by marietterobijn
2y ago
Mariette Robijn I didn’t see that coming. Imagine visiting your neurologist and, when you get there, they can’t wait to hear what fun things you’ve been up to since your last appointment. “So, Mrs. Robijn, tell me, what fun things have you been up to? What?!! Only two? In those four months since our last appointment? Hm, not […] The post So, what fun things have you been up to lately? appeared first on MarietteRobijn.com ..read more
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You ARE your disease after all. Bummer.
Mariëtte Robijn » Parkinson’s
by marietterobijn
2y ago
Mariette Robijn ​We have a lot on our plates with Parkinson’s – accepting, letting go, embracing, exercising, resting, eating healthy, sleeping well, and goodness knows what else. ​Meanwhile, Parkinson’s continues to threaten your brain on all fronts, while your leg shuffles and your hand trembles. You’re acutely aware that you won’t be sprinting through life like a […] The post You ARE your disease after all. Bummer. appeared first on MarietteRobijn.com ..read more
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It Takes Two
Mariëtte Robijn » Parkinson’s
by marietterobijn
2y ago
Mariette Robijn   When something major happens, you tend to want to share it with someone. You’re feeling shocked or happy or sad, and that can be too much for one heart. Nine years ago, my grandmother died. We told the children. Our son of almost 7 was so startled that he started to tremble. A little […] The post It Takes Two appeared first on MarietteRobijn.com ..read more
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You (don’t) know what you’re missing
Mariëtte Robijn » Parkinson’s
by marietterobijn
2y ago
Mariette Robijn My right hand used to be so strong! I could do anything I wanted with it and consider that perfectly normal. These days, whenever I see my right hand, I know: you used to be so strong. You’re doing your best, but you’re definitely not what you used to be. And my heart breaks a […] The post You (don’t) know what you’re missing appeared first on MarietteRobijn.com ..read more
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