Reddit - Parkinson's Disease
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This is Subreddit for everything Parkinson's Disease.
Reddit - Parkinson's Disease
2d ago
Any thoughts on L-Tyrosine for helping with PD? I just started taking 1000mg gummies. Am I fooling myself? I would love to hear about any other supplements that might help!
https://www.peacehealth.org/medical-topics/id/hn-2919008#:~:text=One%20small%20preliminary%20trial%20demonstrated,did%20patients%20using%20L%2Ddopa.
submitted by /u/Teaching-Weird
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Reddit - Parkinson's Disease
2d ago
Dos anyone else have problems using the touch screens at the supermarket checkout? My fingers remain unrecognized upon contact.
submitted by /u/envinoveritas999
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Reddit - Parkinson's Disease
2d ago
About a year ago her foot mysteriously began to hurt. She was diagnosed with bone marrow edema by one doctor, but another doctor said it was something else. No one seems 100% sure what it is.
She's struggled with insomnia as long as I've known her, almost 10 years, and she has frequent vivid nightmares.
At night her foot sometimes flexes and tenses.
She has horrible debilitating anxiety that no amount of therapy or medication can seem to manage. She's also suffering from OCD.
She recently discovered that her estranged father has Parkinson's. We don't know how long ago he was diagnosed, but sh ..read more
Reddit - Parkinson's Disease
2d ago
Anyone else dealing with these issues? What works best for you?
My dad has Parkinson’s and hyponatremia (low sodium). The symptoms of hyponatremia often mimic symptoms of PD. We have his sodium levels tested twice a week (he lives in India and the phlebotomist comes home to collect). His cognitive abilities decline very rapidly with low sodium levels. Below 132, his gait freezes and he becomes very agitated. Other than his PD meds, he’s also on sodium tablets (3x a day) & a vasopressin inhibitor (3x a week). Summers are bad for him because the dehydration makes his PD worse & he can’t ..read more
Reddit - Parkinson's Disease
2d ago
Feeling at a loss here as a child of a father with Parkinson's. After talking with my mom this morning, I thought reaching out to this fabulous community might be helpful. I so appreciate any insights in advance.
The basics are that my dad (64) was diagnosed about 4 years ago. His tremors were never the main symptom. He just was very slow, masked face, and the medicine gave him very bad dyskinesia to the point that he had to limit his intake. For those reasons, we opted for DBS surgery, which he had in October of last year.
After 6 months, my mom (who is his main caretaker -- I live far away ..read more
Reddit - Parkinson's Disease
2d ago
I’ve been doing well with Parkinson’s, taking my meds and chugging along in life, but within the last six months, it seems I’ve been an emotional disaster. I panic easily, I get horrendous, anxiety attacks, I get super depressed and can’t move off the couch. Now, I’ve been this way before pre-Parkinson’s and it never lasted more than maybe a day or two. I would be anxious about a trip and then be fine. I would be depressed about a financial situation, and then work my way out of it and be OK.
Right now I’m working on my wife’s car, and I have to keep stopping because I’m just so exhausted, an ..read more
Reddit - Parkinson's Disease
2d ago
My father, 80, was just diagnosed with PD. He just started medication.
He has had back trouble in recent years, with two surgeries - going from a 76-year old running around tennis courts to an 80-year old shuffling around in the morning, sometimes walking with a cane during the day, and stiffly getting out of his chair at night and then waiting for his left leg to get moving.
He developed a tremor in his lower lip, which comes and goes - mostly not there. And a barely noticeable tremor with a finger on his left hand. Mom says his handwriting has become smaller.
He has always been a creator of ..read more
Reddit - Parkinson's Disease
2d ago
On April 11, ????? ?????????’? ??????? ???, we stand united to raise awareness and support for those battling Parkinson's. Let's shine a light on the challenges faced by individuals and families affected by this condition and work towards a future free from its grasp.
In honor of this important day, we proudly present our entry for the digital poster making contest! Each ????? ????? is equivalent to 1 vote, and we humbly request your support by ???????? ??? ????? ????? ??????. We also hope you can share it with your friends! It's not just a click; it's ..read more
Reddit - Parkinson's Disease
2d ago
We have nothing to lose. Husband had already lost everything already.
submitted by /u/killersheep63
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Reddit - Parkinson's Disease
2d ago
Hi Looking for some assistance for my father with PD. He has severe left foot dystonia. Primarily toes 1-3, sometimes into the ankle. Dystonia is dopamine responsive, but he has limited relief between Rytary doses. Any kind of dopamine “enhancement” has caused psychosis- Amantadine, entacapone, Mirapex ER, etc. No relief with Baclofen or Zanaflex. Botox done x2 with no relief- two different MDS injected. Klonopin provides some limited relief in conjunction with the Rytary. Aspercreme and heat also provide some minimal relief.
Anyone try anything else with success?
Thanks in advance!
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