I'm considering something radical, or at least that's what the brain tumour community might lead you to believe.  I am overdue an annual scan to monitor the area where my tumour was, but the issue is that I actually feel really good! So what does this mean? Well, I was thinking about the risks and benefits of actually being monitored less frequently. You may assume that there wouldn't be any risks of me having an MRI, especially as I don't have contrast and that the procedure does not emit ionising radiation, however the risks I am referring to are not immediately in the forefront of peop ..read more

In a month’s time it will be my birthday. Following an incurable cancer diagnosis every birthday is a real privelege.  Many are not as fortunate as I am. I’m determined to improve outcomes. The best gift for me to make progress would be to receive more donations for the cancer metabolism study.  Click here to contribute Since everybody has their own story, good and bad, I would like to accompany a picture or personal message of your choice with each donation. These will be featured on a dedicated page on the website. It is important because this study isn’t about me, it’s about e ..read more

I am excited to announce that we are reaching the next step in our efforts to raise funds for the brain cancer metabolism study.   We have a new website complete with information about study, how you can donate if interested and why this work is necessary. Coming up we have several meetings, podcast interviews and events to build momentum, reaching a larger audience. This isn't the only way we are generating funds, but it is important for a number of reasons. I believe what we are doing here is truly unique, and our efforts will pave the way for future investigation on metabolic intervent ..read more

Brain cancer is a terrifying diagnosis. In early 2013, at the age of 27, I received this news and I, like tragically so many others, faced that initial mixture of shock and despair.  Thankfully, that’s really where the story begins rather than ends. After the initial reaction, I sought to learn as much as I could about this disease, this enemy at the gate. I wanted to empower myself to find a way of getting my life back, and thankfully I managed to do just that.  Life has changed now, but in a great way because I now get to give hope to others and to use what I have learnt to help t ..read more

I haven’t written a post here in a long time… mainly because so much has happened in my life and more recently so much has been happening in the world. What a wild ride it has been with events we could have never anticipated even in the more recent past (and the reactions to them).  I have experienced love, loss and then love again- with many other events and the rollercoaster of emotions I continue to experience along the way. This is life, there will always be bad though conversely there is always some good to be found in that. Cliches can be irritating but they are often true. There i ..read more

I detailed on my Youtube channel what engagements I have been involved with recently and what direction my research will be heading to. In the video I mention training I am undertaking to learn more about specific laboratory equipment I will be using for some ketogenic focused research related to brain cancer. I also give a brief overview on a few speaking engagements I have been involved in recently, including a visit to parliament with Brain Tumour Research to discuss my personal experiences with ketogenic therapies. Additionally, there was a press release about the APPG in parliament by ..read more

So much time has passed and so much has happened since my last blog entry. I've had so much to say in that time, but every time I thought about putting my thoughts into words something just didn't feel right. I have also suffered from a crisis in confidence lately and been questioning myself in many aspects of my life. To say I have encountered challenging times over the past few months has been an understatement, but I'm determined to work my way through it and out the other side. In terms of my own health, and my latest scan results, they have been exceptional and better than I could have ..read more