Holly sat in a daze under the fluorescent lights of the same hospital she had given birth at just three months ago. Her mother grabbed a chair and took a seat beside her, while they anxiously awaited results from her CT scan. Only hours earlier on Jan. 29, 2016, while giving their 3-month-old and 1-year-old a bath, Holly found herself struggling to speak and think of the words she wanted to say. Troubled by these symptoms, Holly’s mother drove her to the local hospital while her husband Matt — a police officer — worked the night shift. Concerned that she was having a stroke, the medical team ..read more

Credit: Clem Murray / The Philadelphia Inquirer Sirens blared as firefighters descended upon Philadelphia Energy Solutions, the largest gasoline refinery complex on the East Coast, following a series of explosions in June 2019. Linda Long joined more than 100 Philadelphia firefighters to combat the blaze that took more than 24 hours to extinguish.  “I got […] The post Philadelphia Firefighter with Glioblastoma Blazes Ahead for Research appeared first on News & Blog | National Brain Tumor Society ..read more

In late June 2022, the U.S. Food and Drug Administration (FDA) granted accelerated approval to a new treatment combination that will now be available as an option for certain brain tumor patients. At the time, NBTS provided a basic overview of this potential new treatment option. More recently, our team talked with Dr. Patrick Wen, director […] The post Q&A: A New Treatment Approved for Certain Brain Tumors appeared first on News & Blog | National Brain Tumor Society ..read more

“Get your ice-cold lemonade!” These words reverberated through the air outside the Yale School of Medicine as Claire and Molly Lindenbach tried to garner sales for their “Lemon-Aid” Stand. The unusual sight attracted the attention of students and professionals working in the area.  Only four months earlier, Claire and Molly’s dad, Brett, worked as a […] The post Turning Lemons into Lemonade After a Glioblastoma Diagnosis appeared first on News & Blog | National Brain Tumor Society ..read more

The date July 20 holds a different meaning this year for the Hankin family. On a day when Jennifer and Stephanie should be celebrating their parents’ 47th wedding anniversary, the two sisters instead honor their mother’s legacy on Glioblastoma (GBM) Awareness Day.  Cindy passed away from glioblastoma in 2016 at the age of 63. On […] The post Hankin Family Establishes Fund to Advance Glioblastoma Research appeared first on News & Blog | National Brain Tumor Society ..read more

My father, Urbano, was the first in his family to come to the U.S. in the late ’70s from his hometown in Tequila, Mexico. From as far back as I can remember, he has always put family first. My childhood memories are focused around big family events because everything was a cause for celebration. The […] The post Guest Blog: My Dad’s Diagnosis Continues to Bring Our Family Together appeared first on News & Blog | National Brain Tumor Society ..read more

It can be hard to keep track of new clinical trial opportunities opening across the United States. There are many clinical trials actively enrolling patients, and this report provides a summary of the studies that have recently opened or started for primary brain tumor patients*. To learn more about each trial, and to contact the […] The post New Brain Tumor Clinical Trials: January – June 2022 appeared first on News & Blog | National Brain Tumor Society ..read more

On June 22, 2022, the U.S. Food and Drug Administration (FDA) granted accelerated approval to a new treatment combination that will now be available as an option for certain brain tumor patients. The FDA approved the combination of two oral drugs called dabrafenib (brand name: Tafinlar) and trametinib (brand name: Mekinist) for the treatment of […] The post New Treatment Approved for Certain Glioma Patients appeared first on News & Blog | National Brain Tumor Society ..read more

This Gray May, we come together to amplify the voices of the brain tumor community and highlight the extraordinary challenges and extraordinary hope that are familiar to us all. In honor of Brain Tumor Awareness Month, brain tumor survivor Kymberlee B. shares her experience and how she has coped with this devastating diagnosis.  Just before […] The post Guest Blog: Living with a Brain Tumor appeared first on News & Blog | National Brain Tumor Society ..read more

In moments of crisis and uncertainty, members of the brain tumor community reach out to the National Brain Tumor Society’s Personalized Support and Navigation Program. This team empowers brain tumor patients and care partners with quality, unbiased information and resources. With more than 35 years of experience working closely with brain tumor patients and families, […] The post NBTS Program Helps Patients and Care Partners Navigate the Brain Tumor Experience appeared first on News & Blog | National Brain Tumor Society ..read more