Getting A Campaign: Tip Sheet
WEGO Health
by Ilana Jacqueline
1w ago
Interested in being part of a paid influencer campaign with the Social Health Network? We’re looking for patient leaders like you to represent your community in upcoming social media campaigns. Here are some tips on being chosen for an opportunity: You must currently reside in the United States You must be 18 years of age or older You must have a way of being contacted either via email or via a direct message on Instagram You must have a public instagram where you’ve posted about your condition journey or advocacy work You must have a public Facebook page, where you’ve posted about your cond ..read more
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Patient Leadership Council: 2023 Goals
WEGO Health
by Editorial Team
3w ago
Each year, we have our Social Health Award winners join a small group of carefully selected Health Leaders to give feedback on Health Union projects, called the Patient Leadership Council (PLC). We work together at meetings throughout the year, getting to know each other and generating ideas together. At the end of our year together, we asked the 2022 PLC members to share with us their advocacy goals for the new year “I want to share my knowledge and expertise in chronic illness and work across all conditions, helping people to find and create work that both accommodates their work and genera ..read more
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Our Health Leaders’ Proudest Moments From 2022
WEGO Health
by Editorial Team
1M ago
The end of the year is often a time for reflection. Many moments make up those 365 days. We asked patient leaders to think about the last year. On the Social Health Network Facebook page, we asked, “In terms of advocacy, what are you most proud of this year?” Patient leaders made many strides in advocacy efforts throughout the year! Presenting at conferences National conferences take many patient leaders out of their comfort zone. Speaking in front of large gatherings is both scary and rewarding. Conference work was definitely a major source of pride. “Advocating during Allergy and Asthma Day ..read more
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Reshare: Why You Should Be Open With Your Crohn’s Diagnosis
WEGO Health
by Editorial Team
1M ago
Elizabeth Alvarez was diagnosed with Crohn’s Disease in 2011. She was 21 years old and endured many years of suffering…Elizabeth wants nothing more than to share her story, knowledge and special tips she has learned over the 7 years of living with Crohn’s. Her blog thedancingcrohnie.com shares amazing information and encouraging words to those dealing with IBD. This week, we’re resharing her article titled “Why You Should Be Open With Your Crohn’s Diagnosis,” originally posted on InflammatoryBowelDisease.net. She talks about the slow process of getting more comfortable sharing her diagnosis a ..read more
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Reshare: Exploring Blogging as a Newly Diagnosed Patient
WEGO Health
by Bridget Gawinowicz
2M ago
April Stearns was diagnosed at 35 years old with stage 3 breast cancer that she found while breastfeeding her daughter. Four years later, while struggling to “go back to normal” and find other women in similar circumstances, April launched Wildfire Magazine. Now she enjoys not only publishing the stories of those “too young for breast cancer,” she also finds pleasure in helping others heal through telling their stories. In her article titled “Exploring Blogging as a Newly Diagnosed Patient,” originally published on AdvancedBreastCancer.net, April talks about how blogging can help you process ..read more
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Interview: Hope’s Idiopathic Condylar Resorption Journey
WEGO Health
by Editorial Team
2M ago
Recently we had the pleasure of interviewing Health Leader Hope Tocci, who wanted to share her experience living with Idiopathic Condylar Resorption. You can read her story below. How would you describe Idiopathic Condylar Resorption to others? I would describe ICR as a rare degenerative joint disease of the jaw/TMJ that is a progressive, debilitating disease that affects all aspects of your quality of life from physical pain to emotional and mental issues — it even affects the appearance of your face resulting in a recessed lower jaw and chin with no side profile or jaw line in addition to a ..read more
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Meet Some of Our 2022 Content Creators!
WEGO Health
by Editorial Team
2M ago
In 2022, the Social Health Network partnered with several incredible patient leaders to create impactful social media campaigns. As part of this partnership, we want to highlight these amazing individuals’ advocacy work. Tanya Freirich, Lupus Patient Leader Tanya combines her passion as a registered dietician nutritionist with advocating for lupus. Navigating her own lupus diagnosis, she found that lifestyle and dietary changes helped her manage the disease. Tanya loves connecting with others in the lupus community and providing education about nutritional support. She enjoys engaging in vari ..read more
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How to Be an Empowered (and Empowering) Caregiver to A Stage IV Patient
WEGO Health
by Editorial Team
2M ago
We are continuing to celebrate Caregiver Awareness Month here at the Social Health Network by resharing some of our best community articles related to caregiving. At BladderCancer.net, Patient Leader Renata Louwers shares how to be the most empowered and empowering caregiver to someone living with stage IV cancer. She states: “Yes, it was rewarding and meaningful. But ultimately, it was just very difficult – emotionally and physically. I think it is one of the hardest things we can face in life …” She explains how difficult it was to manage her then-husband’s pain, how she tried to prioritize ..read more
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Prepare to Share: Learning How To Tell Your Story
WEGO Health
by Editorial Team
3M ago
When it comes to patient advocacy, a huge part of the experience is telling your story. Whether you’re sharing it on social media, in an interview, to a fellow support group attendee, or with someone whom you just met on the street, there’s a lot of decisions you have to make! What details should I share? How can I condense this story? How much medical information should I include? Does this person even know what my condition is? Patient Leader Jed Finley, who writes on AnkylosingSpondylitis.net and AxialSpondyloarthritis.net, has broken down some of the steps he took to create his “go to” st ..read more
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From Caregiver to Advocate: Tonya’s Story
WEGO Health
by Bridget Gawinowicz
3M ago
November is National Caregiver Month. It’s a month to celebrate the millions of people who care for their aging, disabled, chronically ill, or terminally ill friends and family members. This week, we are sharing a story from patient leader Tonya Hidalgo, a writer at COPD.net. She blogs at The COPD Life and is the author of Traveling With COPD, a basic guide for traveling with extra equipment and oxygen. Her mother lived with COPD, and she was her co-caregiver for years. In this article, she talks about how she went from a caregiver to a patient leader and advocate for her mother. Read the ful ..read more
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