Oh Sh*t, here we go again
Breathinstephen
by Breathinstephen
1M ago
Its been a couple years now since I’ve required a dilation for my posterior glottic stenosis, which I initially developed back in 2019. Because I’ve been doing really well since then, I just kind of assumed I wouldn’t need anymore surgeries, at least not this soon. So much for assuming. That all changed when I had a recent visit with my ENT to address a totally different issue. Here’s the story…. Source ..read more
Visit website
It’s Tezspire’s turn
Breathinstephen
by Breathinstephen
2M ago
As of this week Ive been on Fasenra(benralizumb)for exactly 2 and a half years. My doctors are thrilled that my hospitalizations have dropped by about a 30% since starting on the drug. Im happy about that as well, but honestly I dont “feel” any better and I’m not totally convinced that Fasenra played the only role in that reduction. While its true that I’ve suffered fewer really bad attacks… Source ..read more
Visit website
My first Pilgrimage walk.
Breathinstephen
by Breathinstephen
4M ago
Its been a while since I’ve posted anything to this blog, frankly I didn’t miss it much. I was pretty burnt out always writing about asthma related stuff. Instead, I spent that time trying to get into the best shape possible for my first ever pilgrimage walk. After setting several start dates and then having to cancel them at the last moment due to asthma exacerbations, on Feb 12th of this year I… Source ..read more
Visit website
Happy New Year 2024
Breathinstephen
by Breathinstephen
7M ago
Source ..read more
Visit website
The last post
Breathinstephen
by Breathinstephen
9M ago
Dear friends and readers, Rather than make this a long-drawn-out emotional farewell, or have people wonder why I haven’t been posting as often, or if I’m even still alive, I’ll just cut to the chase. At 69 years old Im still going strong, and my lung disease is what it is, but after nearly two decades and almost 800 posts written, I think it’s time to wrap things up with the blog. I don’t really... Source ..read more
Visit website
Pilgrimage preparation
Breathinstephen
by Breathinstephen
11M ago
Finally, after nearly 3 months of testing the waters to see if I have what it takes to endure a trek like this, I’m starting to feel slightly more optimistic about my ability to complete it. I still have a long road ahead of me, quite literally (roughly 457 kms or 283 miles), but the journey doesn’t seem quite as daunting as it did just a few weeks back. When I get overwhelmed by the thought of... Source ..read more
Visit website
Those pesky moderate asthma flares
Breathinstephen
by Breathinstephen
1y ago
Everyone’s asthma or COPD flare ups manifests differently. Along with the background breathlessness that’s always present to some degree because of my low baseline FEV1, for me there are 3 distinct types of flare ups that I experience on a regular basis. The mild flare, the severe flare and the one in the middle that I probably hate the most, is the moderate or “Pesky” flare. When I say pesky... Source ..read more
Visit website
Next up, the Via Francigena
Breathinstephen
by Breathinstephen
1y ago
To date Ive completed over a dozen full marathons, half marathons and 5 and 10km foot races, but Ive never done a long distance, multi-day hiking type of walk. Health permitting, I hope to remedy that this Fall by walking the last 360 kms of the Via Francigena, from the city of Lucca in the Tuscany region of north Italy to St Peters square in Vatican city. I hope to finish the trek in about 20... Source ..read more
Visit website
Long road to recovery
Breathinstephen
by Breathinstephen
1y ago
This last exacerbation really did a number on me. Who would’ve thought that a simple cold virus could reek so much havoc on a person’s body. I guess being older and and having crappy lungs to begin with, really does put you at greater risk for complications from RSV. After everything I’ve been through with this virus I could certainly be the poster child for that message. It’s been over 9 weeks... Source ..read more
Visit website
Status Asthmaticus with a side of RSV
Breathinstephen
by Breathinstephen
1y ago
First, a couple Happy Pictures. Had a wonderful time in Italy. Was there just short of 3 weeks and despite any fears I may have had about how my lungs might react to the stresses of travel, I actually experienced better than average breathing the entire time I was there. I don’t know if was the ultra clean air of the Swiss Alps or that of Europe in general, but instead of my usual 4-6 neb a day... Source ..read more
Visit website

Follow Breathinstephen on FeedSpot

Continue with Google
Continue with Apple
OR