At a meeting of the ME/CFS Delivery Plan Research Workgroup today, the following update was authorised for realease – Lee McGill (DHSC) joined the Research Working Group today to share an update on the Delivery Plan. We were pleased to hear there has been considerable work happening in the background to process the extremely high ..read more

Anna Redshaw’s ‘Blue Sunday’ Tea Party For M.E. in aid of various ME charities (including ME Research UK) will be held on Sunday 19th May 2024. Since its launch in 2013, the initiative has raised over £100,000 for charities. The premise is simple. As the perfect accompliment a virtual concert is available to grace the ..read more

In November last year, the National Centre for Neuroimmunology and Emerging Diseases at Griffith University in Australia hosted the third ME/CFS and long COVID International Conference. The conference featured presentations from a host of eminent scientist, including ME Research UK-funded researchers, Dr Leighton Barnden and Dr Kiran Thapaliya. Videos of the presentations are now available ..read more

“This group believes that the MRC should be more open-minded in their evaluation of proposals for biomedical research into CFS/ME and that, in order to overcome the perception of bias in their decisions, they [the MRC] should assign at least an equivalent amount of funding (£11 million) to biomedical research as they have done to ..read more

Inadequate funding of ME/CFS biomedical reseach has been an issue for decades and recognised as such by researchers, parliamentarians, people with ME, and by charites. Reports and parliamentary debates (for example, at Westminster, Hollyrood, and at the European Parliament) have called for levels of funding to be increased to reflect both prevalence and impact of ..read more

As part of the DHSC Delivery Plan process a research working group was established and a number of workshops have been planned which aim to stimulate clinical research into ME/CFS, to raise the profile of ME/CFS clinical research, increase collaboration, attract new researchers and formulate research priorities in areas of unmet need. The workshops have ..read more

ME Research UK is a research-focused charity with big ambitions to build upon success, and we are seeking a part-time Donor Relations Officer who can help us grow the supporter base of the charity. If your passion is creating and retaining an engaged, active and loyal supporter base, and you relish the chance of working ..read more

Overview A deeper look Both endothelial dysfunction (impaired function of blood vessel lining known as the endothelium) and herpesviruses are topics of interest in ME/CFS research, though studies linking these subject areas remains sparse.  A review by researchers from Stellenbosch University, South Africa, explored whether a potential relationship between herpesvirus infection and endothelial dysfunction may ..read more

Dr Doug Barrett and Anosha Altaf from the University of Leicester are looking for participants for their ME Research UK-funded study on visual sensory processing and selective attention in ME/CFS. Specifically, they need people with ME/CFS over the age of 18, with normal or corrected-to-normal vision, and no other known neurological disorders. If you would ..read more

Westminster Hall debates are held not in the chamber of the House of Commons but elsewhere in the Palace of Westminster and provide the opportunity to debate any issue, ranging from major constitutional questions to areas of particular interest to MPs and their constituents, outside the Parliamentary calendar set by the Government. There is no ..read more