Convergence was the word indeed as enterprising researchers dug deep into blood samples kept in the deep freeze for almost a decade to show how immune, metabolic and gut issues may be combining together to produce exercise induced post-exertional malaise in ME/CFS. Solving this disease is going to require finding ways to connect these different systems. This study is particularly ..read more

by Jody Smith This year marks 31 years since Thomas Hennessy, Jr. decided that May 12th would be our ME/CFS International Awareness Day. May 12th had been the birthday of army nurse and Red Cross founder Florence Nightingale. After the significant contributions she’d made to the world, she lived with a chronic illness for the last half century of her ..read more

By Bronc Dr. Nina Muirhead is a dermatology surgeon and founding member of Doctors for ME in the UK. Since developing ME in 2016 she has done a lot to promote awareness of the disease writing and speaking to various health bodies across the world including a presentation shown at the 71st World Health Assembly. She is Chair of the ..read more

By Bronc and Eric Pyrrhus For many decades now, people with myalgic encephalomyelitis/ chronic fatigue syndrome (ME/CFS) across the world have had to deal with medical establishments wedded to inaccurate scientific dogma regarding their illness. Alongside this, there has been a disastrous lack of funding for biomedical research into the illness. Thankfully, there is a growing body of open-minded scientists ..read more

Versión en español • Versão em português By Eric Pyrrhus César Medina climbed mountains, lifted weights, and was an avid cyclist. He had a good job. He had a partner. But everything changed in November 2020, thanks to an infection with the novel coronavirus. Today he lives confined to his bed, abandoned by his partner, unemployed, and wearing special compression The post Long COVID in Mexico: Isolation and Disbelief first appeared on Phoenix Rising ..read more

By Bronc In the world we live in people are suffering from all kinds of illnesses, which require a variety of different medications to treat them. Often, the road to finding a novel medication for a particular illness can take many years, as the money for medical trials usually comes from drug companies who have to spend large amounts of The post Dr. Natalie Eaton-Fitch Discusses Repurposed Drugs and the Treatment of Myalgic Encephalomyelitis (ME) first appeared on Phoenix Rising ..read more

By Bronc People living with myalgic encephalomyelitis/ chronic fatigue syndrome (ME/CFS) are definitely not “just a little tired.” But they are indeed tired of some things — such as dealing with medical ignorance, the very slow pace of research, and seemingly endless discussions over terminology and definitions. But in science, precise terminology and precise definitions are absolutely essential in order The post Scientific Findings Distinguish Between Myalgic Encephalomyelitis and Chronic Fatigue Syndrome first appeared on Phoenix Rising ..read more

In the second of a three-part series, people describe the challenges of pursuing fundamental rights for patients with neuroimmune diseases in Mexico. If you haven’t already read the first part of this series, click here. Versión en español • Versão em português By Eric Pyrrhus “I hope that in the future there will be some doctor, organization or someone who The post Part 2: The Challenge of Standing up for Patients in Mexico first appeared on Phoenix Rising ..read more

by Jody Smith May 12th is a special day in the ME/CFS community. It was English army nurse Florence Nightingale’s birthday. In 1992 Thomas Hennessy, Jr. thought her birthday would be a fitting day for raising awareness for us. Why, you ask? Because Florence Nightingale was amazing. Not only did she help to create the Red Cross, and start the first The post A Call to Arms: 30th Anniversary of International ME/CFS & Fibromyalgia Awareness Day first appeared on Phoenix Rising ..read more

Versión en español • Versão em português By Eric Pyrrhus César Medina climbed mountains, lifted weights, and was an avid cyclist. He had a good job. He had a partner. But everything changed in November 2020, thanks to an infection with the novel coronavirus. Today he lives confined to his bed, abandoned by his partner, unemployed, and wearing special compression ..read more